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CDH 2024 Symposium

Collaborating to improve outcomes The main CDH research event is held every two years. This time it was the turn of France and the beautiful city of Lille to host this important event. This event is where CDH UK gets an opportunity to share it’s work and any research. It also helps us to learn […]

AGM 2023

IMPORTANT UPDATE: Due to unforeseen circumstances beyond our control the CDH UK Committee has decided to change the in-person meeting to an online virtual meeting, the time and date remains the same. For the virtual meeting link please email The CDH UK Annual General Meeting will take place on Sunday 19th November 2023 at […]

Join In June 4 CDH!

Join in June 4 CDH has been an official awareness initiative started by CDH UK in 2010 to encourage awareness and action for Congenital Diaphragmatic Hernia (including Eventration of the Diaphragm). The Charity has always celebrated the 28th of June as the penultimate Awareness day and welcomes anyone anywhere to join in. Throughout June there […]

The CDH Patient Journey

We are very proud and excited to have had The CDH Patient Perspective Journey published in Frontiers in Pediatrics (neonatology section) in February 2023. We started to work on producing the patient journey in 2016 following a need to create one for the basis of the development of a CDH Mobile App we had started […]

HM Queen Elizabeth II – 1926-2022

We are deeply saddened by the death of our much loved Her Majesty The Queen and our heartfelt condolences are offered to the Royal Family. Our Chairperson Beverley Power paid this tribute ‘I am deeply saddened by the death of HM Queen Elizabeth II, who was the most amazing woman and Head of State. She […]

Millie Mae Coad

Date Of Birth: 01-01-2022 At 28 weeks We went for a 4d scan and found out she had right sided Cdh . We had so many extra scans , tests and even had to go to London. We got given a 50 percent chance of survival and got given the option to have an abortion […]

Amelia Rhodes

Date Of Birth: 19-04-2020 Amelia was born with LCDH. She pulled through her operation really well and was really strong when they took her off the oxygen. She really struggled in hospital with the feeding part. She wouldn’t drink enough milk by herself which kept her in hospital for a while. Once she mastered drinking […]

CDH Awareness Day/Month 2022!

June is the month to raise extra awareness for Congenital Diaphragmatic Hernia (CDH) and June 28th is awareness day. Throughout June there will be activities for you, your family, friends and colleagues to take part in that will also help to raise much needed funds to continue to support families.  See below what we have […]

CDH 2022 Event

CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers, it is the essential opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH UK is proud to be a sponsor at this event […]

CDH UK helps develop new guidelines to improve pregnancy trials

New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK. Clinical trials in pregnant women […]