Amelia Rhodes

Date Of Birth: 19-04-2020 Amelia was born with LCDH. She pulled through her operation really well and was really strong when they took her off the oxygen. She really struggled in hospital with the feeding part. She wouldn’t drink enough milk by herself which kept her in hospital for a while. Once she mastered drinking […]

CDH Awareness Day/Month 2022!

June is the month to raise extra awareness for Congenital Diaphragmatic Hernia (CDH) and June 28th is awareness day. Throughout June there will be activities for you, your family, friends and colleagues to take part in that will also help to raise much needed funds to continue to support families.  See below what we have […]

CDH 2022 Event

CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers, it is the essential opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH UK is proud to be a sponsor at this event […]

CDH UK helps develop new guidelines to improve pregnancy trials

New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK. Clinical trials in pregnant women […]

CDH Christmas Cracker Quiz!

If you love a quiz, you will love this CDH Christmas Cracker Quiz! Even if you don’t you should still join in and help raise vital funds for CDH UK and be in with a chance of winning a cash prize. It is really easy to join in but don’t forget to register first with […]

Experts at CDH UK warn of ‘no deal’ Brexit effects

Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. […]

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]

5K Your Way 4 CDH UK!

We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with […]

Welcome to The CDH Magazine!

We have renamed our Newsletter The CDH Magazine! It will still feature everything that the newsletter featured but now has the ability to feature even more content! Come take a look by clicking on the link below and let us know what you think! The CDH Magazine Edition 1 2020 The CDH Magazine Edition 2 […]

Jaunt 4 June 4 CDH!

Come on our Virtual challenge during CDH Awareness month and walk during June around the UK and Ireland stopping at CDH specialist hospitals and research facilities and then stop at one of the Royal estates before finishing back at the hometown of CDH UK where you started. You will walk a total of 2500 miles […]