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CDH UK Research Hub

Welcome to our CDH Research Hub! Whether you are a Researcher, Healthcare Professional, Patient, Charity or Organisation we are so glad you are visiting our Research Hub and we hope that you will engage with us. Click on the tab which best describes you to find information, research, registries, surveys and more that may be of interest to you and could help us to find more answers!

Research is vital to improve survival rates and outcomes for patients and their families. It comes in various forms and can simply be asking patients to take part in a survey to find out how they feel about their follow up for example, or it can be a huge project undertaken by many partners including academic researchers and patient organisations often called a Consortium. Whatever form research takes, CDH UK is collaborating and investing in all types of research to help make a difference by contributing time and funds; whether it is looking into causes, prevention or better management and treatment of CDH and any associated issues or complications, or being a part of an exciting research project as a member of a Patient and Public Advisory Group. See our current memberships here Advisory roles and Patient Engagement

In 2011 our Research Fund was founded by our small team of passionate patient experts, with the aim of raising half a million pounds for CDH research. Little did we know that within three years we would have reached this goal and be on the way to the one million mark. You can see how our Research fund is growing by checking out the Research Fund totaliser on our home page. You can find out more about applying for a Research Grant here Research Fund & Grants

We are very proud of our contribution to CDH research and what we have accomplished to date with the help of our amazing supporters and collaborators that come in many forms. This is the first dedicated CDH Research fund to be founded in the world and one which has made a positive impact and has hopefully inspired others to support and encourage our work.

“Large streams from little fountains flow, Tall oaks from little acorns grow.” ~ D Everett 1792