Throughout your pregnancy you can expect to be more closely monitored. Some of the things you can expect are:
Please be aware that not all of the above may apply to your individual care plan.
Your pregnancy should progress normally from a physical and general health point of view. You may however, develop Polyhydramnios during the pregnancy, which is an increase in amniotic fluid surrounding the baby. This will be monitored by the person carrying out your scans and the person responsible for looking after you throughout your pregnancy, such as a consultant obstetrician or Fetal medicine specialist. If the fluid increases too much and you feel uncomfortable, or the doctor feels it necessary, the excess fluid will be drained from around the baby. This is carried out by local anaesthetic and whilst it may be uncomfortable, it should not be painful and your Doctor will explain the procedure fully in advance.
An experimental procedure called FETO (Fetal Endoscopic Trachael Occlusion) may be offered in some cases of CDH. This involves the placement of a balloon into the baby’s trachea to attempt to improve the development of the lungs whilst the baby is growing in the womb. FETO is classed as a minimally invasive procedure carried out by a specialist medical team, but is not without risk. The procedure is currently only carried out at one UK hospital for severe CDH cases and there is no firm evidence to show that this is successful in reducing mortality rates in infants, however, it is shown to have had some success in certain cases. There is a certain criteria required for this procedure and your Doctor can explain what this is.