Welcome to The CDH Magazine 2021 Edition!
The CDH Magazine 2021 Edition has been released, click the link below to take a look!
The CDH Magazine Edition 2 2021
CDH UK helps develop new guidelines to improve pregnancy trials
New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies.
A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK.
Clinical trials in pregnant women are challenging but crucial for saving lives and the advancement of new therapies and treatments for mothers and babies.
Published...
CDH Christmas Cracker Quiz!
If you love a quiz, you will love this CDH Christmas Cracker Quiz! Even if you don’t you should still join in and help raise vital funds for CDH UK and be in with a chance of winning a cash prize. It is really easy to join in but don’t forget to register first with a player account. Why not invite family and friends around and make it a fundraising party night! All details can be found in this link Christmas Cracker Quiz where you can register for a player account and take part.
See...
Experts at CDH UK warn of ‘no deal’ Brexit effects
Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients.
The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub.
The letter has been cited and referred to in other publications. you can read the Health Europa article by clicking on the link below
No deal Brexit could be detrimental...
The Journey of a Little Balloon
Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was long, but they finally reached their destination to evidence, assisted along the way by a dedicated international team and with a little help from CDH UK.
Trigger warning: Some parents may...
5K Your Way 4 CDH UK!
We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with Chris running over the finish line on Sunday 27th June 2021. The challenge is hosted by My virtual Mission (Conqueror challenges) app. You do not have to undertake the full mileage as indicated in the challenge,...
Welcome to The CDH Magazine!
We have renamed our Newsletter The CDH Magazine! It will still feature everything that the newsletter featured but now has the ability to feature even more content!
Come take a look by clicking on the link below and let us know what you think!
The CDH Magazine Edition 1 2020
The CDH Magazine Edition 2 2021
Jaunt 4 June 4 CDH!
Come on our Virtual challenge during CDH Awareness month and walk during June around the UK and Ireland stopping at CDH specialist hospitals and research facilities and then stop at one of the Royal estates before finishing back at the hometown of CDH UK where you started. You will walk a total of 2500 miles (approx how many babies in 10,000 are affected by CDH). You will sign in to your mission app where you can see your progress on a map and even look at where you are on streetview! You can...
CDH UK’s Great Get Together!
Our Great Get Together held online on 28th June 2020 was a huge success that was attended by patient, families and medical professionals.
If you missed this event, you can watch some of the presentations below.
World Birth Defects Day 2020
As partners of the World Birth Defects Day initiative we ask our end users and supporters to take part in raising awareness of this important initiative on the 3rd March.
You can share the World Birth Defects Day logo to promote the day and join the World Birth Defects Day Movement by taking part in this year’s campaign ‘I CARE…….’ a template can be downloaded here Template for the I CARE campaign
hashtags are #WorldBDDay #WBDD2020 #ManyBirthDefects1Voice
