CDH UK

Experts at CDH UK warn of ‘no deal’ Brexit effects

Written on September 21, 2021. Posted in General News, International work, Medical News, Research.

Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. The letter has been cited and referred to in other publications. you can read the Health Europa article by clicking on the link below No deal Brexit could be detrimental for...

The Journey of a Little Balloon

Written on June 10, 2021. Posted in General News, Medical News, Research, Uncategorized.

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was long, but they finally reached their destination to evidence, assisted along the way by a dedicated international team and with a little help from CDH UK. Trigger warning: Some parents may...

5K Your Way 4 CDH UK!

Written on March 25, 2021. Posted in Fundraising Events, General News.

We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with Chris running over the finish line on Sunday 27th June 2021. The challenge is hosted by My virtual Mission (Conqueror challenges) app. You do not have to undertake the full mileage as indicated in the challenge,...

Welcome to The CDH Magazine!

Written on December 23, 2020. Posted in General News, Newsletters.

We have renamed our Newsletter The CDH Magazine! It will still feature everything that the newsletter featured but now has the ability to feature even more content! Come take a look by clicking on the link below and let us know what you think! The CDH Magazine Edition 1 2020

Jaunt 4 June 4 CDH!

Written on May 22, 2020. Posted in Fundraising Events, General News.

Come on our Virtual challenge during CDH Awareness month and walk during June around the UK and Ireland stopping at CDH specialist hospitals and research facilities and then stop at one of the Royal estates before finishing back at the hometown of CDH UK where you started. You will walk a total of 2500 miles (approx how many babies in 10,000 are affected by CDH). You will sign in to your mission app where you can see your progress on a map and even look at where you are on streetview! You can...

CDH UK’s Great Get Together!

Written on May 22, 2020. Posted in General News, Other Events.

Our Great Get Together held online on 28th June 2020 was a huge success that was attended by patient, families and medical professionals. If you missed this event, you can watch some of the presentations below.

World Birth Defects Day 2020

Written on March 2, 2020. Posted in General News, Other Events.

As partners of the World Birth Defects Day initiative we ask our end users and supporters to take part in raising awareness of this important initiative on the 3rd March. You can share the World Birth Defects Day logo to promote the day and join the World Birth Defects Day Movement by taking part in this year’s campaign ‘I CARE…….’ a template can be downloaded here Template for the I CARE campaign hashtags are #WorldBDDay #WBDD2020 #ManyBirthDefects1Voice

Coronovirus (Covid-19)

Written on February 28, 2020. Posted in General News, Medical News.

Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child have any complications or ongoing medical issues. CDH UK has not to date received any specific advice relating to the CDH population and we advise you to keep up to date with advice according to the Department for Health for the country that you live in or are currently visiting. We will of course update should we receive any different advice. UPDATE...

CDH UK makes a significant contribution at the 66th BAPS Congress

Written on July 10, 2019. Posted in General News, Medical News.

CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the end of congress. Beverley our Chair and Research & Development Officer spoke to predominantly trainees at the education day about CDH UK and it’s work and how Healthcare...