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We are very proud and excited to have had The CDH Patient Perspective Journey published in Frontiers in Pediatrics (neonatology section) in February 2023. We
CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers,
New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical
Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit
Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little
Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child
CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was
3rd March is World Birth Defects Day and CDH UK has parnered with the initiative to raise awareness of Birth Defects. Why is this day
CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established
The European Network for Rare and Inherited Congenital Abnormalities (ERNICA) website has now gone live and we would like your feedback on it to ensure
CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th
We are very pleased to be able to announce that CDH UK has agreed to fund the following research projects that have undergone a peer
We are pleased to invite applications for Research Grants from the CDH UK Research Fund via our partner Sparks Children’s Medical Research Charity, as from
Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies,
June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item
Jan Deprest is a Professor of Obstetrics and Gynaecology at the University Hospitals Leuven, in Belgium. He trained in fetal medicine in Leuven, Leiden (Holland)
We are very honoured to have Professor Paul Losty MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) as a Medical Patron and member of our Medical Advisory Panel
Hello everyone! The 2nd & 3rd of February saw many important people gather together in Rome for the CDH conference ‘More Questions than Answers’. We
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