Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. […]
Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]
We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with […]
We have renamed our Newsletter The CDH Magazine! It will still feature everything that the newsletter featured but now has the ability to feature even more content! Come take a look by clicking on the link below and let us know what you think! The CDH Magazine Edition 1 2020 The CDH Magazine Edition 2 […]
Come on our Virtual challenge during CDH Awareness month and walk during June around the UK and Ireland stopping at CDH specialist hospitals and research facilities and then stop at one of the Royal estates before finishing back at the hometown of CDH UK where you started. You will walk a total of 2500 miles […]
Our Great Get Together held online on 28th June 2020 was a huge success that was attended by patient, families and medical professionals.
As partners of the World Birth Defects Day initiative we ask our end users and supporters to take part in raising awareness of this important initiative on the 3rd March. You can share the World Birth Defects Day logo to promote the day and join the World Birth Defects Day Movement by taking part in […]
Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child have any complications or ongoing medical issues. CDH UK has not to date received any specific advice relating to the CDH population and we advise you to keep up to […]
We hope that you find inspiration and hope from the personal stories in the latest edition of our annual newsletter. Thank you to all who contributed! Please click on the image below to read the newsletter.
CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the […]