Charlotte Forber
Charlotte was born with left-sided congenital diaphragmatic hernia on the 2nd February 2018, she had her hernia repair operation on 5th February 2018 at Alder Hey Children’s Hospital. On the 16th February 2018, Charlotte came home.
Minni Boulden-Thomas
My partner and myself attended our 20 week scan and it was then when we knew something was wrong. The sonographer told us that the babies heart was not in the right position and she was going to refer us to a specalist. I remember feeling confused and we had to wait all weekend to […]
Louis Eames
Like many expectant parents, we excitedly (and nervously) went along to our 20 week scan completely oblivious to the devastating news we were about to be told. The sonographer had ‘found something that wasn’t quite right’. The consultant looked at the scan and said he thought it could be CDH but we’d need to be […]
Ezz El Deen
We discovered our baby’s condition at 21st week of pregnancy. We talked with every doctor about that condition. We started reading every piece of information we could find on the web. Nobody could till us what would actually happen or how it’s going to be like. It all depends on my baby lung condition and […]
Cyrus Jai Smith
Cyrus was born via emergency c-section, on 22nd December 2018, weighing 9lb4oz.Cyrus was resuscitated 3 times, and they found he could not breathe on his own so they wheeled him down to NICU, where they found that he had an undiagnosed diaphragmatic hernia.Our little boy spent 3 days in NICU before he got his very […]
Charley Jaye Turnbull
Charley Jaye was born with undiagnosed LSCDH – day 5!had her repair and left NICU when she was 16days old. A true warrior princess. She then went on to have a rare type of meningitis when she was almost 9 months old. She’s the bravest, most beautiful and bright warrior we’ve ever laid eyes on […]
Amelia Madison Maskrey
Millie was born in November 2014, 8yrs after her big brother who also was born with a rare condition (Tracheo Oesophegeal Fistula/Oesophageal Atresia). The pregnancy with Millie was straight forward, though I was kept a close eye on due to her brothers issue.I managed to do a lot of firsts with Millie that I couldn’t […]
George Jennings
We didn’t know anything was wrong until George couldn’t breathe at birth. The emergency button was pressed and the room filled with people who rushed to help my baby to breathe. He turned pink and I got a brief look at him before he was taken away.Four hours later I got to go to NICU […]
Rosie Mae
Rosie was born on 10th July 2019 at the women’s hospital in liverpool UK with LCDH. She was intubated at 4 minutes old and was breathing for herself 4 weeks later after being told at 2 days old she wasn’t going to survive, but she pulled throughRosie had her repair at 14 days old and […]
Lillie-Faith
At the 20 weeks scan we found out we was having a little princess but soon after that joy and happiness came upset and worry, we were told she had a congenital diaphragmatic hernia, towards the end of my pregnancy they told me Lillie only had 20% chance of living, I had to be induced […]