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Cyrus Jai Smith

Cyrus was born via emergency c-section, on 22nd December 2018, weighing 9lb4oz.Cyrus was resuscitated 3 times, and they found he could not breathe on his own so they wheeled him down to NICU, where they found that he had an undiagnosed diaphragmatic hernia.Our little boy spent 3 days in NICU before he got his very […]

Charley Jaye Turnbull

Charley Jaye was born with undiagnosed LSCDH – day 5!had her repair and left NICU when she was 16days old. A true warrior princess. She then went on to have a rare type of meningitis when she was almost 9 months old. She’s the bravest, most beautiful and bright warrior we’ve ever laid eyes on […]

Amelia Madison Maskrey

Millie was born in November 2014, 8yrs after her big brother who also was born with a rare condition (Tracheo Oesophegeal Fistula/Oesophageal Atresia). The pregnancy with Millie was straight forward, though I was kept a close eye on due to her brothers issue.I managed to do a lot of firsts with Millie that I couldn’t […]

George Jennings

We didn’t know anything was wrong until George couldn’t breathe at birth. The emergency button was pressed and the room filled with people who rushed to help my baby to breathe. He turned pink and I got a brief look at him before he was taken away.Four hours later I got to go to NICU […]

Rosie Mae

Rosie was born on 10th July 2019 at the women’s hospital in liverpool UK with LCDH. She was intubated at 4 minutes old and was breathing for herself 4 weeks later after being told at 2 days old she wasn’t going to survive, but she pulled throughRosie had her repair at 14 days old and […]

Lillie-Faith

At the 20 weeks scan we found out we was having a little princess but soon after that joy and happiness came upset and worry, we were told she had a congenital diaphragmatic hernia, towards the end of my pregnancy they told me Lillie only had 20% chance of living, I had to be induced […]

Holly Morris

A Little Angel – Holly Lauren Morris4th November 2008 – 5th November 2008 Holly Lauren’s Story – written by her mum & dad It took five long years, fertility treatment and 3 miscarriages before Holly Lauren was conceived. After loosing our third angel, we decided to give it another try. We were having regular scans […]

Gracie May Barrimore

This is our beautiful angel Gracie May Barrimore. She sadly passed away on 19th may 2014, at only six days old. She passed away due to a medical condition called CDH which means a congenital diaphragmatic hernia. This means the diaphragm doesn’t form correctly in the womb and causes a hole, which means some organs […]

Russell Geoffrey Edward Payne-Webb

The happiest day of my life was when I found out I was expecting my first born child.I went to the 20 weeks scan 27th Dec 2013 and was so excited about finding out whether I was expecting a boy or girl ! Halfway through the scan the sonographer excused herself and went to get […]