Welcome To The CDH UK Magazine 2022 Edition!
The CDH Magazine 2022 Edition has been released, click the link below to take a look! The CDH Magazine Edition 3 2022
Evelynn-ray
Date Of Birth: 2022-05-01Date Of Passing: 2022-05-09 Evelynn was first diagnosed with CDH at our 17 weeks scan as I was already transferred from my choice of hospital to fetal care at Nottingham queens medical centre as we first though she had down syndrome with the amount of extra fluid was around her neck When […]
Phoenix Kenny
My grandson has this and he’s has come on fantastic and every day is a blessing to have this super star we the family would like to thank all who are and is involved in this fantastic boy life
Rio Franklin Mills
Rio was born with right sided congenital diaphragmatic hernia. His bowel, colon and part liver had herniated into his chest. It was found when I was 28 weeks pregnant and he was given a 30 percent chance of survival. He was born by emergency cesarean at Jessops hospital Sheffield and after 8 hours of stabilising […]
Rowan Pearce
Rowan was born on 10th August 2020, in the midst of the pandemic. I remember sitting and reading these stories before he was born, the good and the bad, to try and prepare myself for what might come. It’s taken until now to share our story; I finally feel ready. Ours has a happy ending […]
Arlo Walton
At 33 weeks we found out our beautiful baby boy had CDH after many hospital appointments he was born at 38weeks, he had his surgery at 3 days old he’s now 3 weeks old and doing fantastic after a few ups and downs he’s finally managing to beat every milestone they give him.
Lorenzo
Lorenzo was born with a right side CDH repaired at day 2 at Great Ormond street hospital. He remained on life support for over 8weeks his lungs were very poorly and doctors weren’t sure the extent of the damage caused he then got moved to the local hospital were he remained for a further 4weeks. […]
George Alex
During my first pregnancy, at 20 weeks, our baby was diagnosed with CDH. We found at our local hospital and were given an appointment at St. Georges in London the next day to confirm the diagnosis. Once confirmed, we went through a numbers or test and scans – to confirm it was the only condition […]
Olivia Lennon
Date Of Birth: 2022-07-23Date Of Passing: 2022-07-23 Olivia was diagnosed with a severe congenital diaphragmatic hernia at her 20 week scan. Later in the pregnancy she was also found to have hypoplastic left heart syndrome. Unfortunately we were told that no surgical intervention could be offered and Olivia would be made comfortable after birth until […]
Jaxson Wallace George Garland
Date Of Birth: 2022-06-30Date Of Passing: 2022-06-29 At 20 weeks we found out that our little boy had CDH it was a shock to be told that our little one had a health condition and he had a 50% survival rate to start with.We had to go to Bristol for more tests which confirmed that […]