Rowan Pearce
Rowan was born on 10th August 2020, in the midst of the pandemic. I remember sitting and reading these stories before he was born, the good and the bad, to try and prepare myself for what might come. It’s taken until now to share our story; I finally feel ready. Ours has a happy ending […]
Arlo Walton
At 33 weeks we found out our beautiful baby boy had CDH after many hospital appointments he was born at 38weeks, he had his surgery at 3 days old he’s now 3 weeks old and doing fantastic after a few ups and downs he’s finally managing to beat every milestone they give him.
Lorenzo
Lorenzo was born with a right side CDH repaired at day 2 at Great Ormond street hospital. He remained on life support for over 8weeks his lungs were very poorly and doctors weren’t sure the extent of the damage caused he then got moved to the local hospital were he remained for a further 4weeks. […]
George Alex
During my first pregnancy, at 20 weeks, our baby was diagnosed with CDH. We found at our local hospital and were given an appointment at St. Georges in London the next day to confirm the diagnosis. Once confirmed, we went through a numbers or test and scans – to confirm it was the only condition […]
Olivia Lennon
Date Of Birth: 2022-07-23Date Of Passing: 2022-07-23 Olivia was diagnosed with a severe congenital diaphragmatic hernia at her 20 week scan. Later in the pregnancy she was also found to have hypoplastic left heart syndrome. Unfortunately we were told that no surgical intervention could be offered and Olivia would be made comfortable after birth until […]
Jaxson Wallace George Garland
Date Of Birth: 2022-06-30Date Of Passing: 2022-06-29 At 20 weeks we found out that our little boy had CDH it was a shock to be told that our little one had a health condition and he had a 50% survival rate to start with.We had to go to Bristol for more tests which confirmed that […]
Frederick Paul Boyd
Our little angel Frederick Paul Boyd was born Tuesday 19th April 2022 at 4.37am weighing 4lb 7o, Unfortunately Freddie passed away on 21st April 2022 at 7.00am. Freddie was placed in the moderate – severe category, with 20% chance of survival. I went through with the FETO procedure to double his chances of survival. The […]
Welcome To The CDH UK Magazine 2021 Edition!
The CDH Magazine 2021 Edition has been released, click the link below to take a look! The CDH Magazine Edition 2 2021
Archie Ledger
Our son Archie had an undiagnosed left sided CDH at birth. Our entire family was devastated as CDH was something we had never heard of. He had surgery at 4 days old to repair the hernia and he made a full recovery. Unfortunately at 4 months old, Archie re-herniated and had to have the repair […]
Darragh Davis
This is my grandson when he was born with CDH. He will be 18 years old on 8th June and we are very proud of him.