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Dexter Bowker

Date Of Birth: 2023-03-11Date Of Passing: 2023-03-09 At our 20 weeks scan it was confirmed that Dexter had severe right sided CDH. With his liver up in the chest and his lungs very undeveloping. At 29 weeks we saw the paediatric nurses who told us that if we went full term it would be to […]


After a tough, tiring, 26hours labour, the consultant decided to perform an emergency caesarean section. Fortunately, I had had an epidural to control the pain, so I was topped up and conscious through the operation. At 04.44 my daughter was born, and what should’ve been a lovely experience, became incredibly traumatic. The theatre staff were […]

Natasha Bailey

We found out that Natasha had a left sided diaphragmatic hernia at the 20 week scan. She was born four weeks early at UCLH before being transferred at two days old to Great Ormond Street Hospital and had an operation to repair the hernia at three days old. The repair was a success, however Natasha […]


Jessica was born on the 10th of October 2016 at 36 weeks and 6 days early , she weighed a tiny 5 pounds 5 ounces, we where diagnosed through a sex scan so we knew early on off the complications. Our surgeon was with us through pregnancy and still now at clinic appointments. The ride […]


Date Of Birth: 2022-05-01Date Of Passing: 2022-05-09 Evelynn was first diagnosed with CDH at our 17 weeks scan as I was already transferred from my choice of hospital to fetal care at Nottingham queens medical centre as we first though she had down syndrome with the amount of extra fluid was around her neck When […]

Phoenix Kenny

My grandson has this and he’s has come on fantastic and every day is a blessing to have this super star we the family would like to thank all who are and is involved in this fantastic boy life  

Rio Franklin Mills

Rio was born with right sided congenital diaphragmatic hernia. His bowel, colon and part liver had herniated into his chest. It was found when I was 28 weeks pregnant and he was given a 30 percent chance of survival. He was born by emergency cesarean at Jessops hospital Sheffield and after 8 hours of stabilising […]

Rowan Pearce

Rowan was born on 10th August 2020, in the midst of the pandemic. I remember sitting and reading these stories before he was born, the good and the bad, to try and prepare myself for what might come. It’s taken until now to share our story; I finally feel ready. Ours has a happy ending […]

Arlo Walton

At 33 weeks we found out our beautiful baby boy had CDH after many hospital appointments he was born at 38weeks, he had his surgery at 3 days old he’s now 3 weeks old and doing fantastic after a few ups and downs he’s finally managing to beat every milestone they give him.