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George Alex

During my first pregnancy, at 20 weeks, our baby was diagnosed with CDH. We found at our local hospital and were given an appointment at St. Georges in London the next day to confirm the diagnosis. Once confirmed, we went through a numbers or test and scans – to confirm it was the only condition […]

Olivia Lennon

Date Of Birth: 2022-07-23Date Of Passing: 2022-07-23 Olivia was diagnosed with a severe congenital diaphragmatic hernia at her 20 week scan. Later in the pregnancy she was also found to have hypoplastic left heart syndrome. Unfortunately we were told that no surgical intervention could be offered and Olivia would be made comfortable after birth until […]

Jaxson Wallace George Garland

Date Of Birth: 2022-06-30Date Of Passing: 2022-06-29 At 20 weeks we found out that our little boy had CDH it was a shock to be told that our little one had a health condition and he had a 50% survival rate to start with.We had to go to Bristol for more tests which confirmed that […]

Frederick Paul Boyd

Our little angel Frederick Paul Boyd was born Tuesday 19th April 2022 at 4.37am weighing 4lb 7o, Unfortunately Freddie passed away on 21st April 2022 at 7.00am. Freddie was placed in the moderate – severe category, with 20% chance of survival. I went through with the FETO procedure to double his chances of survival. The […]

Archie Ledger

Our son Archie had an undiagnosed left sided CDH at birth. Our entire family was devastated as CDH was something we had never heard of. He had surgery at 4 days old to repair the hernia and he made a full recovery. Unfortunately at 4 months old, Archie re-herniated and had to have the repair […]

Darragh Davis

This is my grandson when he was born with CDH. He will be 18 years old on 8th June and we are very proud of him.

Jacob Martin

Our beautiful baby boy Jacob was born on the 17th February 2013 and this is our CDH journey. We were told at our 20 week scan in early October 2013 that there was a problem with our baby’s development, his stomach was too high. After attending a specialist clinic at St Mary’s Hospital in Manchester […]

Jessica Chapman

At our 20 week scan we received the devastating news that our baby had left sided CDH. We were distraught and shocked to say the least, having expected everything to go well. After further testing we discovered we were having a baby girl and had appointments ever three weeks at the John Radcliffe hospital in […]

Hallie Anns

We were pleased when we found out that we were pregnant with our second child.  Everything throughout the pregnancy was fine and at the 20 week scan we found out we were having a girl.  No signs of anything wrong were picked up.So we carried on as normal and I gave birth to Hallie on 26th […]