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Kitty Goodman

Date Of Birth: 2010-02-09Date Of Passing: 2010-02-09 Kitty was diagnosed with CDH at a scan at 22 weeks. After 2 weeks of appointments we were told she had very little chance of survial and we made the heartbreaking decision to have a medical termination. She was so beautiful and we were able to spend some […]

Theodore ‘Teddy’ John Biggs

Date Of Birth: 2023-09-18Date Of Passing: 2023-09-18 Teddy was diagnosed with a severe left side CDH from our 20 week scan. We were treated by Kings College Hospital who offered us the FETO treatment as his chances were so low. The decision wasn’t easy as we understood the risks however we wanted to give him […]

Ruairi, Niall, and Jack

Ruairi, Niall, and Jack( my son ) all born in August/September 2000 and had surgery in Royal Belfast hospital for Sick Children. Date Of Birth: 2000-09-25

Georgia Leigh K Turnbull

Georgia was born a healthy baby. We went on holiday to Cyprus just after her second birthday. She took seriously ill and required CPR from her daddy! Upon arrival at Pathos hopsital she had a pneumothorax, this was drained instantly. She was transferred 2 hours alone to Nikosia Children’s hopsital where she was diagnosed with […]

Dexter Bowker

Date Of Birth: 2023-03-11Date Of Passing: 2023-03-09 At our 20 weeks scan it was confirmed that Dexter had severe right sided CDH. With his liver up in the chest and his lungs very undeveloping. At 29 weeks we saw the paediatric nurses who told us that if we went full term it would be to […]


After a tough, tiring, 26hours labour, the consultant decided to perform an emergency caesarean section. Fortunately, I had had an epidural to control the pain, so I was topped up and conscious through the operation. At 04.44 my daughter was born, and what should’ve been a lovely experience, became incredibly traumatic. The theatre staff were […]

Natasha Bailey

We found out that Natasha had a left sided diaphragmatic hernia at the 20 week scan. She was born four weeks early at UCLH before being transferred at two days old to Great Ormond Street Hospital and had an operation to repair the hernia at three days old. The repair was a success, however Natasha […]


Jessica was born on the 10th of October 2016 at 36 weeks and 6 days early , she weighed a tiny 5 pounds 5 ounces, we where diagnosed through a sex scan so we knew early on off the complications. Our surgeon was with us through pregnancy and still now at clinic appointments. The ride […]


Date Of Birth: 2022-05-01Date Of Passing: 2022-05-09 Evelynn was first diagnosed with CDH at our 17 weeks scan as I was already transferred from my choice of hospital to fetal care at Nottingham queens medical centre as we first though she had down syndrome with the amount of extra fluid was around her neck When […]