Poppy Hope Davies
Date Of Birth: 24th of August 2023 Poppy was diagnosed with a left sided diagrammatic hernia at our 20 week scan. It was something we had never heard of and we were devastated and filled with so much worry and uncertainty. CDH UK sent a wonderful welcome pack and the information provided was extremely helpful […]
Welcome To The CDH UK Magazine 2024 Edition!
The CDH Magazine 2024 Edition has been released, click the link below to take a look! The CDH Magazine Edition 4 2024
Kevin Wilke
Date Of Birth: 2008-05-15 My son Kevin Wilke born 15th May 2008 at The Queen Mother’s Hospital in Glasgow. Kevin was born with CDH which has been repaired. Also diagnosed with Fryns Syndrome (we are looking for families that have a love one with Fryns Syndrome)
Orla Kathleen Wilson-Hall
Date Of Birth: 2024-04-27Date Of Passing: 2024-04-27 Orla passed at birth due to left sided congenital diaphragmatic hernia which caused her heart to be displaced leaving her with no lung capacity. She was so loved and missed dearly.
Toby Clegg
Toby was born full term by c section with an undetected right sided hernia, despite having scans every 2 weeks. After life saving surgery, Toby has been left with no lasting complications and at our last appointment he was in the 97th percentile for weight and height. He is a miracle. Our miracle. Words can’t […]
Kayleb – Arthur Barton
Date Of Birth: 2019-02-01Date Of Passing: 2019-02-25 My name is Kayleb I was born with a right and left congenital diaphragmatic hernia I have a big brother called Cameron and I couldn’t wait to meet him but I sadly lost my fight against CDH and passed away peacefully in my mum and dads arms. My […]
Roman William Hill
Here is our brave warrior Roman and his CDH story. A boy with a right sided diaphragmatic hernia with a type C defect and 11% chance of survival. We found out that our baby had CDH at 35 weeks (December 2022). We had gone to visit a birthing centre as this was where we were […]
Amelia-Rose Levi Perry
At 19 weeks pregnant we got the CDH diagnosis and we got told it was severe. After weeks of testing and appointments we got told she would be unlikely to survive and I wouldn’t make it to full term. However out daughter proved everyone wrong and at 39 weeks she came into the world screaming […]
CDH UK Christmas Magazine 2023 Edition!
The CDH Magazine 2023 Edition has been released, click the link below to take a look! The CDH Magazine Edition 3 2023
Finley
Finley was diagnosed at our 36 week scan. It had been a pleasant pregnancy up until then! I was terrified, Finley is my first child and the odds weren’t looking too great. We were told it was 50/50 that he would survive at birth. There was a team waiting when he was born and he […]