Orla Kathleen Wilson-Hall
Date Of Birth: 2024-04-27Date Of Passing: 2024-04-27 Orla passed at birth due to left sided congenital diaphragmatic hernia which caused her heart to be displaced leaving her with no lung capacity. She was so loved and missed dearly.
Toby Clegg
Toby was born full term by c section with an undetected right sided hernia, despite having scans every 2 weeks. After life saving surgery, Toby has been left with no lasting complications and at our last appointment he was in the 97th percentile for weight and height. He is a miracle. Our miracle. Words can’t […]
Kayleb – Arthur Barton
Date Of Birth: 2019-02-01Date Of Passing: 2019-02-25 My name is Kayleb I was born with a right and left congenital diaphragmatic hernia I have a big brother called Cameron and I couldn’t wait to meet him but I sadly lost my fight against CDH and passed away peacefully in my mum and dads arms. My […]
Roman William Hill
Here is our brave warrior Roman and his CDH story. A boy with a right sided diaphragmatic hernia with a type C defect and 11% chance of survival. We found out that our baby had CDH at 35 weeks (December 2022). We had gone to visit a birthing centre as this was where we were […]
Amelia-Rose Levi Perry
At 19 weeks pregnant we got the CDH diagnosis and we got told it was severe. After weeks of testing and appointments we got told she would be unlikely to survive and I wouldn’t make it to full term. However out daughter proved everyone wrong and at 39 weeks she came into the world screaming […]
CDH UK Christmas Magazine 2023 Edition!
The CDH Magazine 2023 Edition has been released, click the link below to take a look! The CDH Magazine Edition 3 2023
Finley
Finley was diagnosed at our 36 week scan. It had been a pleasant pregnancy up until then! I was terrified, Finley is my first child and the odds weren’t looking too great. We were told it was 50/50 that he would survive at birth. There was a team waiting when he was born and he […]
Kitty Goodman
Date Of Birth: 2010-02-09Date Of Passing: 2010-02-09 Kitty was diagnosed with CDH at a scan at 22 weeks. After 2 weeks of appointments we were told she had very little chance of survial and we made the heartbreaking decision to have a medical termination. She was so beautiful and we were able to spend some […]
Theodore ‘Teddy’ John Biggs
Date Of Birth: 2023-09-18Date Of Passing: 2023-09-18 Teddy was diagnosed with a severe left side CDH from our 20 week scan. We were treated by Kings College Hospital who offered us the FETO treatment as his chances were so low. The decision wasn’t easy as we understood the risks however we wanted to give him […]
Ruairi, Niall, and Jack
Ruairi, Niall, and Jack( my son ) all born in August/September 2000 and had surgery in Royal Belfast hospital for Sick Children. Date Of Birth: 2000-09-25