Frederick Paul Boyd

Our little angel Frederick Paul Boyd was born Tuesday 19th April 2022 at 4.37am weighing 4lb 7o, Unfortunately Freddie passed away on 21st April 2022 at 7.00am. Freddie was placed in the moderate – severe category, with 20% chance of survival. I went through with the FETO procedure to double his chances of survival. The […]

Archie Ledger

Our son Archie had an undiagnosed left sided CDH at birth. Our entire family was devastated as CDH was something we had never heard of. He had surgery at 4 days old to repair the hernia and he made a full recovery. Unfortunately at 4 months old, Archie re-herniated and had to have the repair […]

Darragh Davis

This is my grandson when he was born with CDH. He will be 18 years old on 8th June and we are very proud of him.

Jacob Martin

Our beautiful baby boy Jacob was born on the 17th February 2013 and this is our CDH journey. We were told at our 20 week scan in early October 2013 that there was a problem with our baby’s development, his stomach was too high. After attending a specialist clinic at St Mary’s Hospital in Manchester […]

Jessica Chapman

At our 20 week scan we received the devastating news that our baby had left sided CDH. We were distraught and shocked to say the least, having expected everything to go well. After further testing we discovered we were having a baby girl and had appointments ever three weeks at the John Radcliffe hospital in […]

Hallie Anns

We were pleased when we found out that we were pregnant with our second child.  Everything throughout the pregnancy was fine and at the 20 week scan we found out we were having a girl.  No signs of anything wrong were picked up.So we carried on as normal and I gave birth to Hallie on 26th […]

Arayaa Hope Broadmore

On November the 18th 2012 at 4.28am, I gave birth to my beautiful daughter Arayaa, however this was no normal pregnancy. At my 20 week scan instead of finding out the sex of my baby, I was faced with the horrific news that my unborn child had a birth defect known as CDH (congenital diaphragmatic […]

Niamh Fenton

Niamh was diagnosed at the 20 week scan with a left sided hole and a virtually non-existent left lung.  She was induced at 39 weeks at Leeds Infirmary and thankfully quickly stabilised.  There were a few setbacks in the first few days, infections, collapsed lungs and aborted repairs but she was eventually repaired after 7 […]

Noa Jackson

Noa max was born weighing a hefty 9lb 11 on 30th may 2009, by planned c section as like his older brother Joe, he was a breech baby.Nothing could prepare us for the devastation that that day could bring.  I had had several growth scans throughout my pregnancy and no abnormalities were picked up on any […]