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Lighting up The Blackpool Tower for CDH Awareness!

The Blackpool Tower will light up Blue with a Pink heart, which are our Charity Colours and that of the CDH symbol, to raise awareness of Congenital Diaphragmatic Hernia on CDH Awareness Day on 28th June. We are very grateful to Merlin Entertainments Ltd for supporting us with this very important event in our annaul […]


This year our Annual General Meeting (AGM) will be held on Sunday 7th May commencing at 12pm at the following venue: The Fieldhead Hotel Markfield Lane Markfield LE67 9PS This meeting is open to the general public and everyone is welcome. The purpose of the meeting is to comply with legislation, to give up to […]

CDH UK to feature in The Guardian Newspaper Rare Disease Campaign!

We recently partnered with Mediaplanet UK on the Rare Diseases Campaign in The Guardian newspaper and online at Readmotivating insight from thought leaders and learn more from patient stories on rare diseases. Out 28th February 2017 Rare Disease Day!

June is CDH Awareness Month! Join in!

June is CDH Awareness month and we need your help to raise extra awareness, so that mean’s time to dig out your t-shirts, polish your badges, put on your wristbands, make sure the CDH symbol is on all your social media profile pictures and your car stickers are firmly in your windows!! Share the CDH […]

AGM 2016

CDH UK Annual General Meeting Sunday 8th May at 1 pm Venue The Hilton Nottingham Address: Milton Street, Nottingham NG1 3PZ, England Please email for further details

‘Challenging CDH’ Event – a day of education and support

Challenging CDH is the first event of its kind for families and medical professionals affected by Congenital Diaphragmatic Hernia.The day will first and foremost bring families together to offer support, but it is also a day to talk about experiences with medical professionals, to educate each other and to help to improve outcomes for CDH […]

Temporary disruption to Supportline

We are experiencing technical difficulties during a transferral of telephone services and this has resulted in our supportline being temporarily unavailable. For urgent support please otherwise we hope that our lines are back to normal within the next 24 hours.


CDH UK AGM 2014 Sunday 18th May 1pm Day’s Inn Leicester Forest East Services Leicestershire LE3 3GB CDH UK would like to welcome all service users and any other interested parties to it’s Annual General Meeting. Any questions you might like to ask must be submitted by post 2 weeks in advance by submitting them to […]

CDH UK 10th Anniversary Charity Ball!

This year’s Charity Ball is set to be better than ever! Join us on CDH Awareness Day at the magnificent Hotel Russell in London to help us raise funds and awareness for our cause and to celebrate 10 years as a UK registered charity! Located near to transport links, Great Ormond St Hospital, The Institute […]