CDH 2022 Event

CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers, it is the essential opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH UK is proud to be a sponsor at this event […]

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]

June is CDH Awareness Month – Join in June 4 CDH!

June is #CDH Awareness Month and is an opportunity for you to make an impact on helping to improve outcomes for CDH and Eventration patients and their families and to help raise much needed funds to help support families emotionally and practically. Here is what you can do to help this June! First off is […]

European Reference Networks (ERNs) What they are and how they work.

CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]

Awareness Day National Radio Campaign

28th June is CDH Awareness Day and this year we have interviews with families and patients taking place up and down the country to make a real impact on raising awareness. This is the largest radio campaign ever undertaken for CDH. We will hear from one of our Patron’s Professor Paolo De Coppi from The […]

What a great IDEA!

CDH UK is pleased to announce the start of a new international alliance to bring together diaphragmatic and other abdominal wall anomalies organisations and patient representatives under the umbrella organisation called IDEA. IDEA is the acronym for International Diaphragmatic Hernia, Eventration and Abdominal wall Anomalies Alliance. The conditions covered are: Congenital Diaphragmatic Hernia Acquired or […]

London to Southend Run

Jason Hills will be running 60 miles from London to Southend in August.There will be 20 people on bikes also . Details of how to sponsor this event will follow shortly

Lighting up The Blackpool Tower for CDH Awareness!

The Blackpool Tower will light up Blue with a Pink heart, which are our Charity Colours and that of the CDH symbol, to raise awareness of Congenital Diaphragmatic Hernia on CDH Awareness Day on 28th June. We are very grateful to Merlin Entertainments Ltd for supporting us with this very important event in our annaul […]


This year our Annual General Meeting (AGM) will be held on Sunday 7th May commencing at 12pm at the following venue: The Fieldhead Hotel Markfield Lane Markfield LE67 9PS This meeting is open to the general public and everyone is welcome. The purpose of the meeting is to comply with legislation, to give up to […]

CDH UK to feature in The Guardian Newspaper Rare Disease Campaign!

We recently partnered with Mediaplanet UK on the Rare Diseases Campaign in The Guardian newspaper and online at Readmotivating insight from thought leaders and learn more from patient stories on rare diseases. Out 28th February 2017 Rare Disease Day!