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AGM 2023

IMPORTANT UPDATE: Due to unforeseen circumstances beyond our control the CDH UK Committee has decided to change the in-person meeting to an online virtual meeting, the time and date remains the same. For the virtual meeting link please email The CDH UK Annual General Meeting will take place on Sunday 19th November 2023 at […]

Join In June 4 CDH!

Join in June 4 CDH has been an official awareness initiative started by CDH UK in 2010 to encourage awareness and action for Congenital Diaphragmatic Hernia (including Eventration of the Diaphragm). The Charity has always celebrated the 28th of June as the penultimate Awareness day and welcomes anyone anywhere to join in. Throughout June there […]

HM Queen Elizabeth II – 1926-2022

We are deeply saddened by the death of our much loved Her Majesty The Queen and our heartfelt condolences are offered to the Royal Family. Our Chairperson Beverley Power paid this tribute ‘I am deeply saddened by the death of HM Queen Elizabeth II, who was the most amazing woman and Head of State. She […]

CDH 2022 Event

CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers, it is the essential opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH UK is proud to be a sponsor at this event […]

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]

June is CDH Awareness Month – Join in June 4 CDH!

June is #CDH Awareness Month and is an opportunity for you to make an impact on helping to improve outcomes for CDH and Eventration patients and their families and to help raise much needed funds to help support families emotionally and practically. Here is what you can do to help this June! First off is […]

European Reference Networks (ERNs) What they are and how they work.

CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]

Awareness Day National Radio Campaign

28th June is CDH Awareness Day and this year we have interviews with families and patients taking place up and down the country to make a real impact on raising awareness. This is the largest radio campaign ever undertaken for CDH. We will hear from one of our Patron’s Professor Paolo De Coppi from The […]

What a great IDEA!

CDH UK is pleased to announce the start of a new international alliance to bring together diaphragmatic and other abdominal wall anomalies organisations and patient representatives under the umbrella organisation called IDEA. IDEA is the acronym for International Diaphragmatic Hernia, Eventration and Abdominal wall Anomalies Alliance. The conditions covered are: Congenital Diaphragmatic Hernia Acquired or […]

London to Southend Run

Jason Hills will be running 60 miles from London to Southend in August.There will be 20 people on bikes also . Details of how to sponsor this event will follow shortly