Call Us On Freephone 0800 731 6991

June is CDH Awareness Month! Join in!

June is CDH Awareness month and we need your help to raise extra awareness, so that mean’s time to dig out your t-shirts, polish your badges, put on your wristbands, make sure the CDH symbol is on all your social media profile pictures and your car stickers are firmly in your windows!! Share the CDH UK awareness video that you will find on our website and facebook page….Oh and remember to try tell at LEAST one person on each day during June about CDH, because the more people that are aware of Congenital Diaphragmatic Hernia, the more support we gain and the more changes we can make:

Here are our main awareness month events, that we hope you will take part in to spread the word:


Our annual Thunderclap starts on 1st June and finishes on CDH Awareness Day on 28th June with what we hope will be a HUGE Thunderclap message about CDH. This is all about getting supporters to sign up to support the thunderclap and once the target number of people have shown their support, the awareness message goes out on twitter! This is a great way to raise awareness and the link will be posted here and on our facebook and twitter feeds on 1st June.

World Record Attempt Skydive

On the 11th of June CDH UK will be taking part in a World Record attempt tandem skydive, which we hope will be covered in the media and will attract lots of attention to CDH. We are hoping to have a stand at each of the following airfields; Brigg, Nottingham, Peterborough, Swindon, Salisbury and it would be great to see some of you joining us to cheer the CDH UK skydivers on! If you would like to sponsors any of our daredevils, please head over to the Do It For Charity website and search CDH UK or alternatively search Virgin Money Giving.

Dare To Be Aware!

New for 2016 is our Dare To Be Aware challenge on Social Media. We all know how things can go viral on Social Media, so we hope that you will join in with this year’s fun………the worst that can happen is we raise a whole lot of awareness! So here’s the plan………….

Starting on the 1st June, you choose THREE victims to Dare To Be Aware! Once you have decided who they will be you post this message on your social media timeline and tag them in the post:

Dare To Be Aware of CDH? The following will not harm you in any way, but Congenital Diaphragmatic Hernia (CDH) harms lots of babies worldwide, in 50% of cases it is fatal. To find out what it is visit CDH UK. Please help to raise awareness by choosing one of the following ‘Dares’ that you must film stating ‘I dare to be aware of CDH’ before carrying out the dare and then post on Social media along with this post (copied in its entirety)  #CDH #awareness #DareToBeAware and then tag three new victims:

1.       Kiss someone on the lips whilst staring them in the eye without laughing for at least 30 seconds

2.       Impersonate someone

3.       Tell your best joke (try keep it clean!)


Bake 4 Babies

Back for a fifth consecutive year is our ever popular Bake 4 Babies! Organise a cake sale, get your friends, family, colleagues, whoever involved! Get raising those cakes and help raise awareness and funds too! Contact for a free pack.

Drawing attention to CDH

This is one for the kids! We are asking children to draw pictures of people who have helped them through their CDH journey……..this could be a Doctor, Nurse, Teacher, Dinner lady, Mum, Dad, Sister, Brother…….even CDH UK! If you are a bereaved family then siblings can join in. Once they have drawn the picture please add their name, age and who is in the picture, #CDH #cdhuk then take a good quality picture and send it by private message only to our facebook page. Also don’t forget share them on your own pages.

Name our new charity mascots

Thank you for all of the wonderful name suggestions for our new Butterfly mascots. Please vote for your favourite names during June by looking out for the voting link………names to be announced on CDH Awareness Day!

Share A Story

Please send in your stories/experiences for us to share on our facebook page throughout June to and please include a picture if possible.

In addition to the above events, we have other in aid of events going on around the country that you may like to attend and support. Here are a couple to be going on with:

Boxing 4 Babies

Kennedy Power will be taking part in a Boxing match at the Bradford Hotel, Bradford, West Yorkshire on Saturday 4th June to raise awareness and funds for CDH UK. You can sponsor Kennedy here:

Phoebe’s Fun Day

Back again for another year, Kate Dulson has organised this fantastic family event to raise awareness and funds for CDH UK. Why not pop along and show your support and of course enjoy the fun!

Saturday 11th June 11:00 am

The Fox Inn

Bridgnorth Rd