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Roman William Hill

Here is our brave warrior Roman and his CDH story. A boy with a right sided diaphragmatic hernia with a type C defect and 11% chance of survival. We found out that our baby had CDH at 35 weeks (December 2022). We had gone to visit a birthing centre as this was where we were […]

Amelia-Rose Levi Perry

At 19 weeks pregnant we got the CDH diagnosis and we got told it was severe. After weeks of testing and appointments we got told she would be unlikely to survive and I wouldn’t make it to full term. However out daughter proved everyone wrong and at 39 weeks she came into the world screaming […]


Finley was diagnosed at our 36 week scan. It had been a pleasant pregnancy up until then! I was terrified, Finley is my first child and the odds weren’t looking too great. We were told it was 50/50 that he would survive at birth. There was a team waiting when he was born and he […]

Ruairi, Niall, and Jack

Ruairi, Niall, and Jack( my son ) all born in August/September 2000 and had surgery in Royal Belfast hospital for Sick Children. Date Of Birth: 2000-09-25

Georgia Leigh K Turnbull

Georgia was born a healthy baby. We went on holiday to Cyprus just after her second birthday. She took seriously ill and required CPR from her daddy! Upon arrival at Pathos hopsital she had a pneumothorax, this was drained instantly. She was transferred 2 hours alone to Nikosia Children’s hopsital where she was diagnosed with […]


After a tough, tiring, 26hours labour, the consultant decided to perform an emergency caesarean section. Fortunately, I had had an epidural to control the pain, so I was topped up and conscious through the operation. At 04.44 my daughter was born, and what should’ve been a lovely experience, became incredibly traumatic. The theatre staff were […]

Natasha Bailey

We found out that Natasha had a left sided diaphragmatic hernia at the 20 week scan. She was born four weeks early at UCLH before being transferred at two days old to Great Ormond Street Hospital and had an operation to repair the hernia at three days old. The repair was a success, however Natasha […]


Jessica was born on the 10th of October 2016 at 36 weeks and 6 days early , she weighed a tiny 5 pounds 5 ounces, we where diagnosed through a sex scan so we knew early on off the complications. Our surgeon was with us through pregnancy and still now at clinic appointments. The ride […]

Phoenix Kenny

My grandson has this and he’s has come on fantastic and every day is a blessing to have this super star we the family would like to thank all who are and is involved in this fantastic boy life  

Rio Franklin Mills

Rio was born with right sided congenital diaphragmatic hernia. His bowel, colon and part liver had herniated into his chest. It was found when I was 28 weeks pregnant and he was given a 30 percent chance of survival. He was born by emergency cesarean at Jessops hospital Sheffield and after 8 hours of stabilising […]