Rosie Mae
Rosie was born on 10th July 2019 at the women’s hospital in liverpool UK with LCDH. She was intubated at 4 minutes old and was breathing for herself 4 weeks later after being told at 2 days old she wasn’t going to survive, but she pulled throughRosie had her repair at 14 days old and […]
Lillie-Faith
At the 20 weeks scan we found out we was having a little princess but soon after that joy and happiness came upset and worry, we were told she had a congenital diaphragmatic hernia, towards the end of my pregnancy they told me Lillie only had 20% chance of living, I had to be induced […]
Lewis Nathan Richard Boyd
LCDH diagnosed in utero at 17+5 weeks
Holly Morris
A Little Angel – Holly Lauren Morris4th November 2008 – 5th November 2008 Holly Lauren’s Story – written by her mum & dad It took five long years, fertility treatment and 3 miscarriages before Holly Lauren was conceived. After loosing our third angel, we decided to give it another try. We were having regular scans […]
Gracie May Barrimore
This is our beautiful angel Gracie May Barrimore. She sadly passed away on 19th may 2014, at only six days old. She passed away due to a medical condition called CDH which means a congenital diaphragmatic hernia. This means the diaphragm doesn’t form correctly in the womb and causes a hole, which means some organs […]
Russell Geoffrey Edward Payne-Webb
The happiest day of my life was when I found out I was expecting my first born child.I went to the 20 weeks scan 27th Dec 2013 and was so excited about finding out whether I was expecting a boy or girl ! Halfway through the scan the sonographer excused herself and went to get […]
Callum Jamie Reece Austin
In July 2000 our world came crashing down when we were told at our 20 wk scan that our baby boy Callum had a right sided CDH. We were given the option to end the pregnancy, or carry on. We didn’t even need to think about it; no way was I going end our baby […]
Joshua Harris Barker
Joshua was diagnosed with left sided CDH at my 20 wk scan. After a traumatic pregnancy he was born prematurely at 32 wks. He was a tough little cookie but sadly passed away after 5 days.Joshua Ethan 11.5.03 ~ 16.5.03Love Lasts Until Forever xx
Harry Charles Murray Allum
Our story with CDH started just like many other families. Attending our 20 weeks scan very excited to know whether we were having a boy or a girl but little did we know that, that was the least of our worries. On my scan it appeared that Harry’s heart was displaced to the left the […]
Imogen Leena Hope Williams
Imogen Leena Hope Williams was born on 30/12/12 at 7.06 am, at Southampton Princess Anne Hospital. She had left sided CDH. My waters had ruptured Christmas day 2012 and I had been in hospital since then. Imogen was born at 34 weeks, so as well as having CDH she was six weeks prem. Day one […]