Ellie Edmonds
It was the best feeling ever when me (Katie) and Andrew my partner found out we were expecting our first baby due 10/03/2012. It was going to be a girl! PERFECT! just what I was hoping for.All my appointments and scans confirmed we were going to have a healthy good sized baby. On 10/03/2012 I […]
James Grayson
James’ hernia was discovered at 28 weeks and thought to be very severe. As it turned out when he was born he didn’t need full ventilation, his repair happened two days later and went very well. After an infection and five weeks in Leeds neonatal unit we took him home. He is now a happy […]
Caden Churcher
Jack Lammin
Thomas Hebden
Our Story My Darling Thomas was born 22nd June 2011 at 4:33am weighing in at 9lbs 11oz! He had a rough start to life, but every day I look at him and think how unbelievably lucky we are. I had never even heard of Congenital Diaphragmatic Hernia before this day, I had numerous scans and […]
Lexi Garnham
Our little girl Lexi is 2 in May and was born with CDH. After her surgery at 12 hours old we were told she had her stomach, liver, spleen, small and large bowel in her chest and to expect a long recovery and several weeks on a ventilator, but within 48hours she was breathing all […]
Owen Bloomfield
Owen was born on the 23rd July 2009 with left sided cdh, 2 holes in his heart and pulmonary hypertension in his lungs. He was taken over to Yorkhill hospital straight away and eventually a few hours later i got to see my baby boy. We were told that with all 3 conditions his chance […]
Olivia Halford
Our daughter Olivia-Stephanie Halford was born on the 1st of August 2010 with CDH in Womens Birmingham Hospital
Evie Hobkirk
my story is a little different to average, me and my husband went along to our first scan when I was 12 weeks pregnant we both felt very excited, but also a little anxious as would any first time parents when we went into the sonographer room we were told the baby was at higher risk […]
Alvaro Newbold
Alvaro was diagnosed with CDH at 20 weeks in Watford hospital and we were immediately referred to UCHL. During the next 18 weeks we were told he had a very good chance of survival as the Liver was down and the LHR was good. I remember asking the lead specialist his chances and was encouraged […]