CDH UK helps develop new guidelines to improve pregnancy trials

New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK. Clinical trials in pregnant women […]

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]

5K Your Way 4 CDH UK!

We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with […]

Coronovirus (Covid-19)

Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child have any complications or ongoing medical issues. CDH UK has not to date received any specific advice relating to the CDH population and we advise you to keep up to […]

CDH UK makes a significant contribution at the 66th BAPS Congress

CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the […]

European Reference Networks (ERNs) What they are and how they work.

CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]