Emma Fahey
Emma was born on 2nd August 2004, with a LCDH, which we had found out about 6 weeks previously. She had been given a 20% chance of survival.She had her repair at 4 days old, and came home aged 4 weeks and 1 day. Over the next 2 years, Emma was readmitted to hospital several […]
Zach Hall
At our 20 week scan, I was expecting everything to be completely fine, confident as I’d already had two scans which had shown nothing out of the ordinary. During the scan the sonographer called someone else in to have a look, which was the first sign that something wasn’t right. They told me that my […]
Joshua Evans
My son, Joshua Evans was born on 03/01/2003 with a left sided diaphragmatic hernia. I had a scan on the 7th January to check blood flow as I had developed a headache. It was at the scan that the condition was diagnosed. I went to Newcastle the next day for a more detailed scan and […]
Sonny Bryson
This is Sonny born in Sept 2007. Sonny was diagnosed with left sided CDH at my 20wk scan. After an amniocentesis confirmed that there was no other genetic problems, we were referred to Glasgow’s Queen Mother Maternity Hospital Fetal Medicine Dept. After a detailed ultrasound scan Sonny was given a 60% chance of survival at […]
Louis Smith
I have decided to write my story of how I felt being pregnant for the second time having had Louis , my first son (right sided CDH ). Louis was born 01-07-2005 in Hackney after induction and a long labour finally with forceps. We had no idea he was ill. On the 2nd day on […]
Myles
At my 20 week scan, Myles was diagnosed with left-sided CDH with a 1.7cm hole in his diaphragm and both his intestines and spleen in his chest. I was induced on my due date at Liverpool Women’s and he was born the day after and immediately incubated and took to special care. At 3 days […]
Charlotte Forber
Charlotte was born with left-sided congenital diaphragmatic hernia on the 2nd February 2018, she had her hernia repair operation on 5th February 2018 at Alder Hey Children’s Hospital. On the 16th February 2018, Charlotte came home.
Minni Boulden-Thomas
My partner and myself attended our 20 week scan and it was then when we knew something was wrong. The sonographer told us that the babies heart was not in the right position and she was going to refer us to a specalist. I remember feeling confused and we had to wait all weekend to […]
Louis Eames
Like many expectant parents, we excitedly (and nervously) went along to our 20 week scan completely oblivious to the devastating news we were about to be told. The sonographer had ‘found something that wasn’t quite right’. The consultant looked at the scan and said he thought it could be CDH but we’d need to be […]
Ezz El Deen
We discovered our baby’s condition at 21st week of pregnancy. We talked with every doctor about that condition. We started reading every piece of information we could find on the web. Nobody could till us what would actually happen or how it’s going to be like. It all depends on my baby lung condition and […]