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AGM 2018

PUBLIC NOTICE Our Annual General Meeting (AGM) will be held on Sunday 8th April at 12pm at: The Fieldhouse Hotel Markfield Lane Leicester LE67 9PS Please address any questions to the Committee by emailing committee@cdhuk.org.uk or in writing to the registered office address at least two weeks prior to the AGM to allow adequate time for any […]

London to Southend Run

Jason Hills will be running 60 miles from London to Southend in August.There will be 20 people on bikes also . Details of how to sponsor this event will follow shortly

Congenital Diaphragmatic Hernia International Symposium Meeting

CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th of November 2017 at Alder Hey Children’s Hospital, Liverpool. We particularly welcome patient Support Groups to this meeting. Full details as follows:1st Announcement Congenital Diaphragmatic Hernia International SYMPOSIUM Meeting  – Liverpool  […]

Lighting up The Blackpool Tower for CDH Awareness!

The Blackpool Tower will light up Blue with a Pink heart, which are our Charity Colours and that of the CDH symbol, to raise awareness of Congenital Diaphragmatic Hernia on CDH Awareness Day on 28th June. We are very grateful to Merlin Entertainments Ltd for supporting us with this very important event in our annaul […]

CDH Awareness Month 2017!

It’s that time of year again folks, where we initiate and educate all things CDH…..welcome to CDH Awareness month 2017……….who’s in?Why is raising awareness of Congenital Diaphragmatic Hernia so important? Well firstly, it helps to know what you are dealing with should it happen to you and it provides family and friends with knowledge too. […]

CDH UK AGM 2017

This year our Annual General Meeting (AGM) will be held on Sunday 7th May commencing at 12pm at the following venue: The Fieldhead Hotel Markfield Lane Markfield LE67 9PS This meeting is open to the general public and everyone is welcome. The purpose of the meeting is to comply with legislation, to give up to […]

CDH UK funds vital research to help improve outcomes for CDH patients

We are very pleased to be able to announce that CDH UK has agreed to fund the following research projects that have undergone a peer review process by Sparks Children’s Medical Research Charity and will be fund monitored by Great Ormond St Children’s Charity.Building a functional muscle to repair congenital diaphragmatic hernia – Professor Paolo […]

CDH UK to feature in The Guardian Newspaper Rare Disease Campaign!

We recently partnered with Mediaplanet UK on the Rare Diseases Campaign in The Guardian newspaper and online at http://bit.ly/2lF2pma Readmotivating insight from thought leaders and learn more from patient stories on rare diseases. Out 28th February 2017 Rare Disease Day!

June is CDH Awareness Month! Join in!

June is CDH Awareness month and we need your help to raise extra awareness, so that mean’s time to dig out your t-shirts, polish your badges, put on your wristbands, make sure the CDH symbol is on all your social media profile pictures and your car stickers are firmly in your windows!! Share the CDH […]