Join In June 4 CDH!
Join in June 4 CDH has been an official awareness initiative started by CDH UK in 2010 to encourage awareness and action for Congenital Diaphragmatic Hernia (including Eventration of the Diaphragm). The Charity has always celebrated the 28th of June as the penultimate Awareness day and welcomes anyone anywhere to join in. Throughout June there […]
CDH 2022 Event
CDH2022 is a follow on from previous symposia that is this time being held in Glasgow, Scotland. Bringing together Medical professionals, Patients Organisations and Researchers, it is the essential opportunity to hear the latest basic science and clinical research in congenital diaphragmatic hernia care. CDH UK is proud to be a sponsor at this event […]
CDH UK helps develop new guidelines to improve pregnancy trials
New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK. Clinical trials in pregnant women […]
Experts at CDH UK warn of ‘no deal’ Brexit effects
Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. […]
The Journey of a Little Balloon
Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]
5K Your Way 4 CDH UK!
We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with […]