Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients.
The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub.
The letter has been cited and referred to in other publications. you can read the Health Europa article by clicking on the link below
No deal Brexit could be detrimental for UK rare disease patients (healtheuropa.eu)
