Callum Paul Axford
Callum was born Prematurly at 33 weeks, on 5th July 2010 with left-sided CDH. He came home from hospital on 21st February 2011, nearly 8 months old. Callum is on home oxygen and has a Gastrostomy, but he is a little fighter. Callum was in Cherubs Winter Newletter, and if you Google Callum Axford you will […]
Sam Walshaw
Our story begins very much the same as many families story does. We went for our 20 week scan only to be told that something may be wrong. After spending what seemed a lifetime in a side room, we were told that our precious little baby had CDH and they couldn’t tell how big the […]
Emma Fahey
Emma was born on 2nd August 2004, with a LCDH, which we had found out about 6 weeks previously. She had been given a 20% chance of survival.She had her repair at 4 days old, and came home aged 4 weeks and 1 day. Over the next 2 years, Emma was readmitted to hospital several […]
Zach Hall
At our 20 week scan, I was expecting everything to be completely fine, confident as I’d already had two scans which had shown nothing out of the ordinary. During the scan the sonographer called someone else in to have a look, which was the first sign that something wasn’t right. They told me that my […]
Joshua Evans
My son, Joshua Evans was born on 03/01/2003 with a left sided diaphragmatic hernia. I had a scan on the 7th January to check blood flow as I had developed a headache. It was at the scan that the condition was diagnosed. I went to Newcastle the next day for a more detailed scan and […]
Sonny Bryson
This is Sonny born in Sept 2007. Sonny was diagnosed with left sided CDH at my 20wk scan. After an amniocentesis confirmed that there was no other genetic problems, we were referred to Glasgow’s Queen Mother Maternity Hospital Fetal Medicine Dept. After a detailed ultrasound scan Sonny was given a 60% chance of survival at […]
Louis Smith
I have decided to write my story of how I felt being pregnant for the second time having had Louis , my first son (right sided CDH ). Louis was born 01-07-2005 in Hackney after induction and a long labour finally with forceps. We had no idea he was ill. On the 2nd day on […]
Myles
At my 20 week scan, Myles was diagnosed with left-sided CDH with a 1.7cm hole in his diaphragm and both his intestines and spleen in his chest. I was induced on my due date at Liverpool Women’s and he was born the day after and immediately incubated and took to special care. At 3 days […]
Charlotte Forber
Charlotte was born with left-sided congenital diaphragmatic hernia on the 2nd February 2018, she had her hernia repair operation on 5th February 2018 at Alder Hey Children’s Hospital. On the 16th February 2018, Charlotte came home.
Minni Boulden-Thomas
My partner and myself attended our 20 week scan and it was then when we knew something was wrong. The sonographer told us that the babies heart was not in the right position and she was going to refer us to a specalist. I remember feeling confused and we had to wait all weekend to […]