CDH UK helps develop new guidelines to improve pregnancy trials

New guidelines to improve pregnancy trials will pave way for novel therapies for women and babies. A new grading system to monitor complications during clinical trials involving pregnant women, which will significantly improve their safety, has been co-developed by UCL researchers and an international team of experts including CDH UK. Clinical trials in pregnant women […]

Experts at CDH UK warn of ‘no deal’ Brexit effects

Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. […]

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was […]

European Reference Networks (ERNs) What they are and how they work.

CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]

CDH UK collaborates with the Global Paedsurg Project

WHAT IS THE GLOBAL PAEDSURG PROJECT? It is a multi-centre prospective cohort study of congenital anomalies to compare outcomes between LMICs and high-income countries (HICs) globally. What is a prospective cohort study? to search A prospective cohort study in a nutshell is a study design that follows over time a group of similar individuals (cohorts) who differ with […]

CDH UK partners with the DHREAMS Study

DHREAMS – what does the Acronym stand for? Diaphragmatic Hernia Research Exploration Advancing Molecular Science Where is the study based? The study is based at the Colombia University Medical Centre in New York and includes medical centres (hospitals) from across the US and other parts of the world. Wendy Chung, MD, PhD Principal Investigator Kennedy […]

Congenital Diaphragmatic Hernia International Symposium Meeting

CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th of November 2017 at Alder Hey Children’s Hospital, Liverpool. We particularly welcome patient Support Groups to this meeting. Full details as follows:1st Announcement Congenital Diaphragmatic Hernia International SYMPOSIUM Meeting  – Liverpool  […]

CDH UK funds vital research to help improve outcomes for CDH patients

We are very pleased to be able to announce that CDH UK has agreed to fund the following research projects that have undergone a peer review process by Sparks Children’s Medical Research Charity and will be fund monitored by Great Ormond St Children’s Charity.Building a functional muscle to repair congenital diaphragmatic hernia – Professor Paolo […]

Call out for Research Grant applications goes live!

We are pleased to invite applications for Research Grants from the CDH UK Research Fund via our partner Sparks Children’s Medical Research Charity, as from Friday 1st April 2016 until Wednesday 18th May 2016. Further information can be found along with application details via our Partner link. CDH UK would like to thank all of […]

CDH UK responds to the MBRRACE-UK Confidential Enquiry into CDH at Birmingham NEC

Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report […]