Findlay Jordan
I’ll never forget the day we found out you were ill – Monday 25th September 2006 at 4pm. We felt like our world had collapsed. The sonographer was taking ages then she went to get a second opinion then said “It appears some of your baby’s diaphragm is missing but don’t worry – It’s fixable”. […]
Brody Michael Kelly
Our CDH journey started in August 2010 when we went for our 20 week scan. Andy and I were so excited and couldn’t wait to see our little baby! I got laid down in the scan room and looked up at the screen…there he was looking like an actual little person, it was amazing. The […]
Freya Molly Anne Martin
Freya Molly Anne Martin- May 21st 2010 18.49pmWe have been very lucky to be blessed with a very healthy boy Winston Harry James Martin who was born on the 7th of May 2008, He is the one who has kept us strong throughout this hard time. Myself and my partner Bev decided it was time […]
The Blackwell Family
My son kyle is now 5 years old, he was diagnosed with cdh when he was 3 hours old. he had surgery when he was 48 hours old. kyle has pulmonary hypertension and despite all the hospital admissions and being ventilated 8 times in his first 3 yrs of life he is doing really well […]
Finlay James Johnson
Our precious little boy Finlay James was welcomed into the world on 9th December 2009 weighing 6lb9oz, sadly our brave little soldier grew his wings on the 17th December 2009. Finlay was born with an isolated left sided Congenital Diaphragmatic Hernia (CDH) which meant that his little lungs were not able to form properly and […]
Alexa Cowan
Our little girl Alexa was born with rcdh. She lived seven hours after birth & her condition rapidly deteriorated from she was born. 14/06/2018 At our 20 week anomaly scan everything seemed to be going fine until the end when the sonographer mentioned she wasn’t happy with the chest area & went to get another […]
Theodore Frank Tidy
Theodore was diagnosed with LCDH at the 20 weeks scan. At 10 days old had vortex patch places where his diaphragm should have grown. His lungs were really small and at 4 months old died of IPH pulmonary haemorrhage of the lungs. After loads of research I eventually found one person living with both of […]
Abigail Suthers
My baby girl Abigail was born prematurely at 29 weeks when I went into spontaneous labour. I had no idea she had a diaphragmatic hernia until I was informed shortly after birth. Abigail was on life support and passed away at 8 hours old as her lungs were not compatible with life. It was a […]
Oliver James Hall
Up until our 20 week scan we thought we had a healthy baby growing inside. When we went in they struggled to scan our little boys heart and asked if we had heard of CDH we both had no idea. Our son also had a cleft lip and pallet which was picked up then also. […]
Archie David Larkins
Archie was diagnosed with LCDH at 19 weeks. He qualified for ECMO but passed trying to transfer him from Royal London to Evelina hospital. He fought so hard and was so beautiful. He will forever be in my heart.