My son kyle is now 5 years old, he was diagnosed with cdh when he was 3 hours old. he had surgery when he was 48 hours old. kyle has pulmonary hypertension and despite all the hospital admissions and being ventilated 8 times in his first 3 yrs of life he is doing really well and is an inspiration to me and everyone in my family. we look forward to him growing up and enjoying some of the tings he hasn’t yet been able to do.
Unfortunately Kyle passed away not long after his story was published.