Alexa Cowan
Our little girl Alexa was born with rcdh. She lived seven hours after birth & her condition rapidly deteriorated from she was born. 14/06/2018 At our 20 week anomaly scan everything seemed to be going fine until the end when the sonographer mentioned she wasn’t happy with the chest area & went to get another […]
Theodore Frank Tidy
Theodore was diagnosed with LCDH at the 20 weeks scan. At 10 days old had vortex patch places where his diaphragm should have grown. His lungs were really small and at 4 months old died of IPH pulmonary haemorrhage of the lungs. After loads of research I eventually found one person living with both of […]
Abigail Suthers
My baby girl Abigail was born prematurely at 29 weeks when I went into spontaneous labour. I had no idea she had a diaphragmatic hernia until I was informed shortly after birth. Abigail was on life support and passed away at 8 hours old as her lungs were not compatible with life. It was a […]
Oliver James Hall
Up until our 20 week scan we thought we had a healthy baby growing inside. When we went in they struggled to scan our little boys heart and asked if we had heard of CDH we both had no idea. Our son also had a cleft lip and pallet which was picked up then also. […]
Archie David Larkins
Archie was diagnosed with LCDH at 19 weeks. He qualified for ECMO but passed trying to transfer him from Royal London to Evelina hospital. He fought so hard and was so beautiful. He will forever be in my heart.
Theo James McNulty
My Beautiful Baby Boy Went To Sleep With The Angels At Just 3 Weeks Old. He Put Up A Fight From Day 1 But Unfortunately His Repair Surgery Caused Him Consistent Severe pulmonary hypertension Which Sadly Caused Him To Loose His Battle.
Arthur
Arthur was born healthy and happy on November 10th 2020 but sadly collapsed a few hours after birth, and then diagnosed with CDH. We had no idea about him having this condition as it can indeed not be seen on scans. Our world fell apart but we stayed strong while he was fighting for his […]
Ariella Carmel Boezalt-Wilson
Ariella was born with the rarity of gastroschisis with liver (intestines, bowel and liver) at a gestation of 30+4 weeks, weighing 900g at UCLH. She was a little fighter who was treated in GOSH over the duration of 5 days. Sadly, our little warrior developed a bilateral intracranial haemorrhage, which had caused such substantial damage […]
AGM 2019
This year’s AGM will be held from 1pm on Sunday 19th May 2019 at: The Field Head Hotel, Markfield Lane, Markfield Leicester, LE679PS. 01530245454 GET DIRECTIONS This is a public meeting open to all interested in the activities of the charity. If you are interested in attending the meeting could you please email events@cdhuk.org.uk
Run for Research and grab yourself a place in the Virgin Asics 10K!
Thank You for checking out our events and for supporting our really important cause! and for supporting our really important cause! CDH UK has partnered with the Virgin Asics 10K event taking place in London on 21st July and we have FIVE charity places. If you are interested in joining the team and grabbing a […]