Harry Steven Linacre
My Baby Boy Harry Hello my name is Alex and i am 21 years old. During the first 20 weeks of my pregnancy i was on cloud nine. Both scans revealed my baby boy was healthy. We were over the moon. However at 28 weeks pregnant we decided to get a 4d scan to see […]
Annabelle Merryn Booth
Our story starts way back in February 2012 when I came up high risk on my 12 weeks scan & bloods. This was our 3rd pregnancy – 1st gave us our wonderful daughter Jessica in 2009 and we lost our 2nd pregnancy at just 9 weeks in 2010. We had come up 1 in 20 […]
Connor Rhys Millis
This is my little angel Connor who was born in Sept 2008 with cdh.Had my little boy in cardiff but was transfered very quickly to GOSH for ECMO.he battled very bravely but sadly grew his angel wings in Dec 2008Will always think of him love him so much
Alex Biddle
Well were do we start to share our experiences of CDH Alex’s journey is still ongoing and he is still in hospital but he has overcome such much and is such a warrior and a fighter and as one of the doctors here is Oxford calls him ‘Brillant Biddle”. My pregnancy progress normally until we […]
Lily Kaberry
Findlay Jordan
I’ll never forget the day we found out you were ill – Monday 25th September 2006 at 4pm. We felt like our world had collapsed. The sonographer was taking ages then she went to get a second opinion then said “It appears some of your baby’s diaphragm is missing but don’t worry – It’s fixable”. […]
Brody Michael Kelly
Our CDH journey started in August 2010 when we went for our 20 week scan. Andy and I were so excited and couldn’t wait to see our little baby! I got laid down in the scan room and looked up at the screen…there he was looking like an actual little person, it was amazing. The […]
Freya Molly Anne Martin
Freya Molly Anne Martin- May 21st 2010 18.49pmWe have been very lucky to be blessed with a very healthy boy Winston Harry James Martin who was born on the 7th of May 2008, He is the one who has kept us strong throughout this hard time. Myself and my partner Bev decided it was time […]
The Blackwell Family
My son kyle is now 5 years old, he was diagnosed with cdh when he was 3 hours old. he had surgery when he was 48 hours old. kyle has pulmonary hypertension and despite all the hospital admissions and being ventilated 8 times in his first 3 yrs of life he is doing really well […]
Finlay James Johnson
Our precious little boy Finlay James was welcomed into the world on 9th December 2009 weighing 6lb9oz, sadly our brave little soldier grew his wings on the 17th December 2009. Finlay was born with an isolated left sided Congenital Diaphragmatic Hernia (CDH) which meant that his little lungs were not able to form properly and […]