Theodore was diagnosed with LCDH at the 20 weeks scan. At 10 days old had vortex patch places where his diaphragm should have grown. His lungs were really small and at 4 months old died of IPH pulmonary haemorrhage of the lungs. After loads of research I eventually found one person living with both of these defects from Australia. She struggles from day to day but she’s still here and fighting. I miss my son so much but am also thankful for the time we had with him as many others don’t even get that.
- 0800 731 6991
- committee@cdhuk.org.uk
