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Our little angel Frederick Paul Boyd was born Tuesday 19th April 2022 at 4.37am weighing 4lb 7o, Unfortunately Freddie passed away on 21st April 2022 at 7.00am.
Freddie was placed in the moderate – severe category, with 20% chance of survival. I went through with the FETO procedure to double his chances of survival. The balloon was placed when I was 28 weeks pregnant, and then removed when I was 34 weeks pregnant. His LHR nearly doubled from 26% to 46%! My waters broke when I was 34+4. Freddie was so tiny. His oxygen/saturation levels were just between 70/80%. We tried to get him on ECMO but he was just too poorly. His oxygen/saturation just kept dropping. It was too much for him. Before he passed, I held him in my arms. He opened his little eyes as if to tell me he was ready to go. It was beautiful.
Freddie was born on April 19th, which is the international day of CDH awareness! I created a short video to show our journey. Its been physically and mentally exhausting. We didn’t get the ‘normal’ pregnancy experience and was constantly full of worry. However, throughout it all, Freddie was amazing. We are so proud of him and how hard he fought till the very end.
We will miss him forever. Until we meet again my love.
