Date Of Birth: 2025-01-28
Date Of Passing: 2025-02-13
We learnt about our baby having CDH at our 20 week scan. We wanted to give him the best chance he could have we had many different appointments to check that everything was going as good as can be he was growing really well his due date was 6th February 2025. Still, we were being induced and he arrived 28th January 2025 he was our second child.
We were sent for an emergency c section after seven and half hours and nothing happening he finally made an entrance into the world and hearing that cry from him right away set our minds at ease he was doing really well and was only needing 10% oxygen he was staying strong and they finally took him to surgery at seventy two hours old that was the longest five hours we have ever had to wait through we finally got the call to say he was out of surgery and was doing really well they also informed us that they found his body had created a sack round all the organs that were in the wrong place.
The next few days were a bit rough for us as he started to become worse he was on so many different medication to help him recover and to help keep him calm as the days went on he was needing more and more assistance he needed more help from the ventilator within a week he was needing full support from the ventilator and ended up on every medication they could give him to help but it was hard to see him like this when he was doing so good at the start by day 15 we had now had multiple days being told he is very poorly we knew it would not be long before we had to say goodbye we made it to day 16 and the call was made to say there is nothing else they can do to help him and he was not going to get any better we had to make the call of either keep going and watching how much pain he was in or to just enjoy the last few moments we would get with our son we were put into a beautiful room to spend the last few hours with him without loads of wires or medication we sat in this room singing to him and reading stories to him the last book i read to him was a bedtime book, i had just finished the book and closed it when his ventilator started beeping and saying it was disconnected we rang for the midwife and nurse and that was when we were told he had gone he had waited for me to finish his book before he left us it felt like he was waiting for us to except he was leaving us he passed on 13th February. Little did he know we will never except him leaving us we will never be okay with him leaving us but at the same time i was just happy he wasn’t in pain anymore and that gave me a little bit of peace he got the best care anyone could ever ask for.
Nothing in this world ever prepares you for the loss of a child and the emotions you go through is very different for everyone but the love i had and still have for my little beautiful boy will live on for as long as i do he will be remembered by all his family until the end of time it will always hurt but he put up the best fight he could he just could’t fight anymore it was his time to go he spent 16 days fighting a fight no one will ever understand and i am so proud of him for trying so hard i hoped the whole time he would become a survivor story but not everyone gets what they want i just hope this helps someone who is struggling too we all know what you are going through
