My beautiful Lilly was born 30.8.10 and diagnosed almost straight away with RCDH as she could not make her first cry. Nothing had shown on any scans and it was a complete and utter shock. She was transferred to Leeds General Infirmary at a few hours old, and was told she might not make to journey. She did however, and fought for 23 hours, but it was not to be. All of our families including my son Harry ( then 5 ) were with her when she died. And I am so grateful for that. I love my girl and miss her every single day, Sleep tight my Lilly until we meet again xx