3rd March is World Birth Defects Day and CDH UK has parnered with the initiative to raise awareness of Birth Defects.
Why is this day important to CDH UK and the patients and families it supports?
Well…… because CDH is congenital condition, which means it is a type of birth defect, then this initiative will help to highlight CDH to the public and policymakers etc. and will also help with research and improving outcomes.
How can you support World Birth Defects Day?
CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this network means that we work as the patient voice for CDH and we also work closely with other conditions (and their respective patient representatives) that are covered by this particular...
CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th of November 2017 at Alder Hey Children’s Hospital, Liverpool. We particularly welcome patient Support Groups to this meeting. Full details as follows:1st Announcement
Congenital Diaphragmatic Hernia
International SYMPOSIUM Meeting – Liverpool 2017
November 14th – NOVEMBER 15TH 2017
Dear Colleagues and Friends...
We are very pleased to be able to announce that CDH UK has agreed to fund the following research projects that have undergone a peer review process by Sparks Children’s Medical Research Charity and will be fund monitored by Great Ormond St Children’s Charity.Building a functional muscle to repair congenital diaphragmatic hernia – Professor Paolo De Coppi – UCL institute of Child Health
Long term health and health service use in children and adults with congenital diaphragmatic...
We are pleased to invite applications for Research Grants from the CDH UK Research Fund via our partner Sparks Children’s Medical Research Charity, as from Friday 1st April 2016 until Wednesday 18th May 2016. Further information can be found along with application details via our Partner link.
CDH UK would like to thank all of it’s supporters and donors who have helped us to raise an incredible amount of money for our Research Fund and anyone who would like to contribute by fundraising...
Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK’s response to follow. Please read the lay report and the full report here:
June 28th is CDH Awareness Day Here is what we have going on!
‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on CDH UK has been invited to speak at this years CDH conference/workshop in Rotterdam, which has been arranged by Professor Dick Tibboel and colleagues on behalf of the CDH EURO CONSORTIUM, and will take place at the Erasmus MC Sophia Children’s Hospital, Rotterdam on the 9th-11th June 2013.
The conference aims to...
Jan Deprest is a Professor of Obstetrics and Gynaecology at the University Hospitals Leuven, in Belgium. He trained in fetal medicine in Leuven, Leiden (Holland) and London (U.K.). He established the Eurofoetus consortium, which is dedicated to the development of instruments and techniques for minimally invasive fetal and placental surgery. That group earlier demonstrated that laser surgery in identical twins with “twin-to-twin transfusion syndrome” yields the best outcome. The Leuven Fetal...
We are very honoured to have Professor Paul Losty MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) as a Medical Patron and member of our Medical Advisory Panel for our charity.
Paul Losty is a Professor of Paediatric Surgery at Alder Hey Children’s NHS Foundation Trust and the University of Liverpool. Professor Losty trained in General Surgery and Paediatric Surgery in Dublin – Ireland, Boston – USA and Liverpool – England. Over the last 20 years Professor Losty has successfully...