World Birth Defects Day 2020
As partners of the World Birth Defects Day initiative we ask our end users and supporters to take part in raising awareness of this important initiative on the 3rd March. You can share the World Birth Defects Day logo to promote the day and join the World Birth Defects Day Movement by taking part in […]
Coronovirus (Covid-19)
Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child have any complications or ongoing medical issues. CDH UK has not to date received any specific advice relating to the CDH population and we advise you to keep up to […]
CDH UK Christmas Newsletter 2019
We hope that you find inspiration and hope from the personal stories in the latest edition of our annual newsletter. Thank you to all who contributed! Please click on the image below to read the newsletter.
CDH UK makes a significant contribution at the 66th BAPS Congress
CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the […]
June is CDH Awareness Month – Join in June 4 CDH!
June is #CDH Awareness Month and is an opportunity for you to make an impact on helping to improve outcomes for CDH and Eventration patients and their families and to help raise much needed funds to help support families emotionally and practically. Here is what you can do to help this June! First off is […]
AGM 2019
This year’s AGM will be held from 1pm on Sunday 19th May 2019 at: The Field Head Hotel, Markfield Lane, Markfield Leicester, LE679PS. 01530245454 GET DIRECTIONS This is a public meeting open to all interested in the activities of the charity. If you are interested in attending the meeting could you please email events@cdhuk.org.uk
European Reference Networks (ERNs) What they are and how they work.
CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]
Rare Disease Day 2019
We have supported Rare Disease Day for many years and this year is no different. The theme for 2019 is:‘Bridging health and social care’. Focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the […]
ERNICA website goes live!
The European Network for Rare and Inherited Congenital Abnormalities (ERNICA) website has now gone live and we would like your feedback on it to ensure that it can continue to develop and improve for patients as well as Medics. You can read all about ERNICA and find out about CDH UK’s involvement as a founding […]
Our GDPR Statement
On 25th May 2018 a new General Data Protection Regulation (GDPR) came into force. This is our statement.