June is #CDH Awareness Month and is an opportunity for you to make an impact on helping to improve outcomes for CDH and Eventration patients and their families and to help raise much needed funds to help support families emotionally and practically.
Here is what you can do to help this June!
First off is the official hashtag which is #CDHTheHoleStory….. we want to tell the whole story this June about CDH…..what may begin as a hole in a diaphragm can lead to a whole set of challenges...
We have supported Rare Disease Day for many years and this year is no different. The theme for 2019 is:‘Bridging health and social care’. Focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the world face every day.
CDH UK will be releasing a survey around this topic, as many of our families experience issues surrounding this topic and we...
June is CDH Awareness Month and so we are inviting you to take part in an awareness/fundraising campaign that everyone can take part in (even the dog!), that you can fit in with you lifestyle and that gets you up and moving for a great cause! We are asking you to walk, jog or run a marathon in a month (26 miles), which you can do either in the comfort of your own home or in the great outdoors; it is totally up to you! If you have a garden, run around that, if you have a local running track,...
Our Annual General Meeting (AGM) will be held on Sunday 8th April at 12pm at:
The Fieldhouse Hotel
Please address any questions to the Committee by emailing firstname.lastname@example.org or in writing to the registered office address at least two weeks prior to the AGM to allow adequate time for any relevant paperwork to be ready to present during the meeting.
CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th of November 2017 at Alder Hey Children’s Hospital, Liverpool. We particularly welcome patient Support Groups to this meeting. Full details as follows:1st Announcement
Congenital Diaphragmatic Hernia
International SYMPOSIUM Meeting – Liverpool 2017
November 14th – NOVEMBER 15TH 2017
Dear Colleagues and Friends...
It’s that time of year again folks, where we initiate and educate all things CDH…..welcome to CDH Awareness month 2017……….who’s in?Why is raising awareness of Congenital Diaphragmatic Hernia so important?
Well firstly, it helps to know what you are dealing with should it happen to you and it provides family and friends with knowledge too. Secondly, it opens up new connections for our families and for the charity, be that with other families, likeminded organisations, medical professionals or...
CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops………..we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and...
Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it’s complications.
The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too…….here’s how:
Make a short video of yourself undertaking an activity or sport that makes you breathless and then say...