Arthur
Arthur was born healthy and happy on November 10th 2020 but sadly collapsed a few hours after birth, and then diagnosed with CDH. We had no idea about him having this condition as it can indeed not be seen on scans. Our world fell apart but we stayed strong while he was fighting for his […]
Ariella Carmel Boezalt-Wilson
Ariella was born with the rarity of gastroschisis with liver (intestines, bowel and liver) at a gestation of 30+4 weeks, weighing 900g at UCLH. She was a little fighter who was treated in GOSH over the duration of 5 days. Sadly, our little warrior developed a bilateral intracranial haemorrhage, which had caused such substantial damage […]
AGM 2019
This year’s AGM will be held from 1pm on Sunday 19th May 2019 at: The Field Head Hotel, Markfield Lane, Markfield Leicester, LE679PS. 01530245454 GET DIRECTIONS This is a public meeting open to all interested in the activities of the charity. If you are interested in attending the meeting could you please email events@cdhuk.org.uk
Run for Research and grab yourself a place in the Virgin Asics 10K!
Thank You for checking out our events and for supporting our really important cause! and for supporting our really important cause! CDH UK has partnered with the Virgin Asics 10K event taking place in London on 21st July and we have FIVE charity places. If you are interested in joining the team and grabbing a […]
World Birth Defects Day!
3rd March is World Birth Defects Day and CDH UK has parnered with the initiative to raise awareness of Birth Defects. Why is this day important to CDH UK and the patients and families it supports? Well…… because CDH is congenital condition, which means it is a type of birth defect, then this initiative will […]
CDH UK Newsletter – Christmas 2018
Please download our latest CDH UK newsletter. This Winter edition has been guest edited by Beverley Power. Please read how she became involved with the charity plus many more stories and updates. https://cdhuk.org.uk/wp-content/uploads/Documents/2001-CDH-NEWSLETTER-20.12.18.pdf?_t=1639946064
CDH UK collaborates with the Global Paedsurg Project
WHAT IS THE GLOBAL PAEDSURG PROJECT? It is a multi-centre prospective cohort study of congenital anomalies to compare outcomes between LMICs and high-income countries (HICs) globally. What is a prospective cohort study? to search A prospective cohort study in a nutshell is a study design that follows over time a group of similar individuals (cohorts) who differ with […]
CDH UK partners with the DHREAMS Study
DHREAMS – what does the Acronym stand for? Diaphragmatic Hernia Research Exploration Advancing Molecular Science Where is the study based? The study is based at the Colombia University Medical Centre in New York and includes medical centres (hospitals) from across the US and other parts of the world. Wendy Chung, MD, PhD Principal Investigator Kennedy […]