We spend a lot of our time in the background working with researchers, PhD students and healthcare professionals on research programmes and collaborations and also conducting our own in house studies and surveys. Here are some of the publications that we have authored or co-authored.

1. The CDH Patient Perspective Journey
2. Does website‐based information add any value in counseling mothers expecting a baby with severe congenital diaphragmatic hernia?
3. Long-term feeding issue and its impact on the daily life of congenital diaphragmatic hernia survivors: results of the first patient-led survey
4. Study protocol: a core outcome set for perinatal interventions for congenital diaphragmatic hernia
5. What should we tell parents? Congenital diaphragmatic hernia
6. Randomized Trial For Fetal Surgery – results for severe & moderate left sided CDH
7. Mortality from gastrointestinal congenital anomalies at 264 hospitals in 74 low-income, middle-income, and high-income countries: a multicentre, international, prospective cohort study
8. Development of standard definitions and grading for Maternal and Fetal Adverse Event Terminology
9. Patient‐reported outcomes for congenital diaphragmatic hernia: A qualitative study
10. Prenatal diagnosis of congenital diaphragmatic hernia: Parental counselling and support needs