CDH UK makes a significant contribution at the 66th BAPS Congress
CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the […]
June is CDH Awareness Month – Join in June 4 CDH!
June is #CDH Awareness Month and is an opportunity for you to make an impact on helping to improve outcomes for CDH and Eventration patients and their families and to help raise much needed funds to help support families emotionally and practically. Here is what you can do to help this June! First off is […]
AGM 2019
This year’s AGM will be held from 1pm on Sunday 19th May 2019 at: The Field Head Hotel, Markfield Lane, Markfield Leicester, LE679PS. 01530245454 GET DIRECTIONS This is a public meeting open to all interested in the activities of the charity. If you are interested in attending the meeting could you please email events@cdhuk.org.uk
European Reference Networks (ERNs) What they are and how they work.
CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this […]
Rare Disease Day 2019
We have supported Rare Disease Day for many years and this year is no different. The theme for 2019 is:‘Bridging health and social care’. Focusing on bridging the gaps in the coordination between medical, social and support services in order to tackle the challenges that people living with a rare disease and their families around the […]
ERNICA website goes live!
The European Network for Rare and Inherited Congenital Abnormalities (ERNICA) website has now gone live and we would like your feedback on it to ensure that it can continue to develop and improve for patients as well as Medics. You can read all about ERNICA and find out about CDH UK’s involvement as a founding […]
Our GDPR Statement
On 25th May 2018 a new General Data Protection Regulation (GDPR) came into force. This is our statement.
JOG 4 JUNE 4 CDH! A Marathon In A Month!
June is CDH Awareness Month and so we are inviting you to take part in an awareness/fundraising campaign that everyone can take part in (even the dog!), that you can fit in with you lifestyle and that gets you up and moving for a great cause! We are asking you to walk, jog or run […]
AGM 2018
PUBLIC NOTICE Our Annual General Meeting (AGM) will be held on Sunday 8th April at 12pm at: The Fieldhouse Hotel Markfield Lane Leicester LE67 9PS Please address any questions to the Committee by emailing committee@cdhuk.org.uk or in writing to the registered office address at least two weeks prior to the AGM to allow adequate time for any […]
Congenital Diaphragmatic Hernia International Symposium Meeting
CDH UK is proud to be a sponsor for the upcoming CDH International Meeting for Medical professionals and associated organisations on the 14th and 15th of November 2017 at Alder Hey Children’s Hospital, Liverpool. We particularly welcome patient Support Groups to this meeting. Full details as follows:1st Announcement Congenital Diaphragmatic Hernia International SYMPOSIUM Meeting – Liverpool […]