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Home
About CDH
About CDH
What is CDH?
How Is CDH Diagnosed?
What To Expect During Your Pregnancy
What Will Happen During The Birth?
What Happens After Baby Is Born?
What Happens Over The Coming Days?
Repairing The Hernia
Losing Your Baby
Possible Outcomes And Ongoing Problems
Feelings And Emotions
Growing Up And School
About CDH UK
About CDH UK
Our Patrons
View Our Patrons
Professor Dick Tibboel
Professor Jan Deprest
Professor Paolo De Coppi
Professor Paul D Losty
Our Medical Advisory Panel
Our Family And Supporters Panel
Family Albums
Non Survivors
View Album
Add To Album
Survivors
View Album
Add To Album
Remembering
Remembering
Add A Star
Our Complaints Policy
Research
Need Help
Need Help?
Counselling
Home 2 Hospital
Help 4 Home
Help 4 Holidays
Forget Me Not
Help Near You
Ongoing Support
Transition Of Care
Helpful Resources
Support Us
Support Us
Take Part In An Event
Fundraise
Fundraising Resources
Heroes
Fundraising and Merchandise
Our Shop
Create Your Own Fundraising Page
Hospitals Caring For CDH Babies
News
Contact Us
Covid-19
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Home
About CDH
Find Out About CDH
What is CDH?
How Is CDH Diagnosed?
What To Expect During Your Pregnancy
What Will Happen During The Birth?
What Happens After Baby Is Born?
What Happens Over The Coming Days?
Repairing The Hernia
Losing Your Baby
Possible Outcomes And Ongoing Problems
Feelings And Emotions
Growing Up And School
About CDH UK
About Our Charity
Our Patrons
View All CDH UK Patrons
Professor Paul D Losty
Professor Paolo De Coppi
Professor Jan Deprest
Professor Dick Tibboel
Our Medical Advisory Panel
Our Family And Supporters Panel
Family Album
Non-Survivors
View Album
Add To Album For Non Survivors
Survivors
View Album
Add To Album For Survivors
Remembering
View Stars
Add a star
Our Complaints Policy
Research
Need Help?
How We Can Help
Counselling
Home 2 Hospital
Help 4 Home
Help 4 Holidays
Forget Me Not
Help Near You
Ongoing Support
Transition Of Care
Helpful Resources
Support Us
Ways To Support CDH UK
Take Part In An Event
Fundraise
Fundraising Resources
Heroes
Fundraising and Merchandise
Our Shop
Create Your Own Fundraising Page
Hospitals Caring For CDH Babies
News
Contact Us
Covid-19
Menu
Home
About CDH
Find Out About CDH
What is CDH?
How Is CDH Diagnosed?
What To Expect During Your Pregnancy
What Will Happen During The Birth?
What Happens After Baby Is Born?
What Happens Over The Coming Days?
Repairing The Hernia
Losing Your Baby
Possible Outcomes And Ongoing Problems
Feelings And Emotions
Growing Up And School
About CDH UK
About Our Charity
Our Patrons
View All CDH UK Patrons
Professor Paul D Losty
Professor Paolo De Coppi
Professor Jan Deprest
Professor Dick Tibboel
Our Medical Advisory Panel
Our Family And Supporters Panel
Family Album
Non-Survivors
View Album
Add To Album For Non Survivors
Survivors
View Album
Add To Album For Survivors
Remembering
View Stars
Add a star
Our Complaints Policy
Research
Need Help?
How We Can Help
Counselling
Home 2 Hospital
Help 4 Home
Help 4 Holidays
Forget Me Not
Help Near You
Ongoing Support
Transition Of Care
Helpful Resources
Support Us
Ways To Support CDH UK
Take Part In An Event
Fundraise
Fundraising Resources
Heroes
Fundraising and Merchandise
Our Shop
Create Your Own Fundraising Page
Hospitals Caring For CDH Babies
News
Contact Us
Covid-19
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Lily Kaberry
My beautiful Lilly was born 30.8.10 and diagnosed almost straight away with RCDH as she could not make her first cry. Nothing had shown on any scans and it was a complete and utter shock. She was transferred to Leeds General Infirmary at a few hours old, and was told she might not make to journey. She did however, and fought for 23 hours, but it was not to be. All of our families including my son Harry ( then 5 ) were with her when she died. And I am so grateful for that. I love my girl and miss her every single day, Sleep tight my Lilly until we meet again xx