call us on freephone 0800 731 6991

CDH UK to speak at International CDH Conference in Rotterdam

June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on CDH UK has been invited to speak at this years CDH conference/workshop in Rotterdam, which has been arranged by Professor Dick Tibboel and colleagues on behalf of the CDH EURO CONSORTIUM,  and will take place at the Erasmus MC Sophia Children’s Hospital, Rotterdam on the 9th-11th June 2013. The conference aims to...

Continue reading

CDH UK FAMILY GET TOGETHER’S 2013

CDH UK welcomes all families to it’s annual Family Get Together in Chesterfield, Derbyshire hosted by the Hills Family. This is the first Get Together of 2013, with others being announced shortly. Our Family Get Together’s are an opportunity for families affected by CDH to come together for a chat and a coffee to share experiences and to offer support to each other. We also have a workshop session during the afternoon whereby we discuss a topic relating to CDH. We also have Creation...

Continue reading

CDH UK AGM 2013

CDH UK AGM 2013 Sunday 28th April 1pm Leicester Forest East Services Leicestershire LE3 3GB CDH UK would like to welcome all our service users and any other interested parties to join us for the AGM on Sunday April 28th 2013 at 1pm. Any questions you might like to ask must be submitted by post 2 weeks in advance by submitting them to committee@cdhuk.org.uk If you have any special requirements and would like to attend then please get in touch with us directly and we will be happy to assist

Continue reading

CDH family to appear on the hit TV show ‘One Born Every Minute’ to raise awareness

One of our families is to appear on Episode 13 of the hit TV show ‘One Born Every Minute’ to raise awareness of CDH to around 2.5 million viewers. Hayley, who is a member of our Family & Supporter’s Panel (FASP) and her partner Pete allowed remote cameras to film their birth experience at the Leeds General Infirmary in August 2012 not knowing at the time what the outcome would be. Sadly Kaiden died, but the couple decided to allow their story to go ahead and be included...

Continue reading

CDH UK AGM – POSTPONED DUE TO WEATHER WARNINGS ISSUED BY THE MET OFFICE

DUE TO ADVERSE WEATHER WARNINGS OF SNOW AND ICE FOR THE LEICESTER AREA THE COMMITTEE HAS POSTPONED THE MEETING AND WILL ISSUE A NEW DATE ASAP. CDH UK AGM Sunday, March 24, 2013 at 1:00pm Junction 21/22 Days Inn Hotel. Leicester LE3 3G   On Sunday 24th March 2013 at 1pm CDH UK will be holding it’s AGM. The meeting is open to anyone who wishes to attend and any questions should be put in writing to the committee two weeks prior to the event. If you wish...

Continue reading

Winter 2012 Newsletter

The production of our Winter newsletter is well under way and we are looking for stories and features from our families and supporters. Maybe you would like to share your CDH pregnancy & birth experience, or tell us how your fundraiser was organised and how it went on the day. If you have a CDH survivor maybe you would like to share how you have coped with any ongoing issues or share any milestones that they have reached. If you sadly lost your baby or child, how are you doing after your...

Continue reading

CDH UK welcomes Professor Jan Deprest as a Patron and Medical Advisor

Jan Deprest is a Professor of Obstetrics and Gynaecology at the University Hospitals Leuven, in Belgium. He trained in fetal medicine in Leuven, Leiden (Holland) and London (U.K.). He established the Eurofoetus consortium, which is dedicated to the development of instruments and techniques for minimally invasive fetal and placental surgery. That group earlier demonstrated that laser surgery in identical twins with “twin-to-twin transfusion syndrome” yields the best outcome. The Leuven Fetal...

Continue reading

CDH Awareness Video

We are extremely pleased and proud to present to you the very 1st edit of our CDH Awareness Film. We are aware of a couple of errors and it is not the finished article. This film has taken an awful lot of time, effort and thought and we would like to show it to you all before it goes to final edit, so that we can have your feedback. The film lasts approx. 13 minutes and will be our Charity’s main awareness film. There will be another film released at a later date focusing more on the medical...

Continue reading

Moment For Memories

On National CDH Awareness Day at 12 noon, we ask you all to give a few moments to remember and honour all babies, children and adults including their families that have been affected by CDH. Thank You ♥ https://www.facebook.com/events/256582344447856/

Continue reading

CDH UK is a registered charity in England and Wales (no. 1106065) and Scotland (no. SC042410) | Privacy Policy | Disclaimer | Glossary