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CDH family to appear on the hit TV show ‘One Born Every Minute’ to raise awareness

One of our families is to appear on Episode 13 of the hit TV show ‘One Born Every Minute’ to raise awareness of CDH to around 2.5 million viewers. Hayley, who is a member of our Family & Supporter’s Panel (FASP) and her partner Pete allowed remote cameras to film their birth experience at the Leeds General Infirmary in August 2012 not knowing at the time what the outcome would be. Sadly Kaiden died, but the couple decided to allow their story to go ahead and be included...

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CDH UK AGM – POSTPONED DUE TO WEATHER WARNINGS ISSUED BY THE MET OFFICE

DUE TO ADVERSE WEATHER WARNINGS OF SNOW AND ICE FOR THE LEICESTER AREA THE COMMITTEE HAS POSTPONED THE MEETING AND WILL ISSUE A NEW DATE ASAP. CDH UK AGM Sunday, March 24, 2013 at 1:00pm Junction 21/22 Days Inn Hotel. Leicester LE3 3G   On Sunday 24th March 2013 at 1pm CDH UK will be holding it’s AGM. The meeting is open to anyone who wishes to attend and any questions should be put in writing to the committee two weeks prior to the event. If you wish...

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Winter 2012 Newsletter

The production of our Winter newsletter is well under way and we are looking for stories and features from our families and supporters. Maybe you would like to share your CDH pregnancy & birth experience, or tell us how your fundraiser was organised and how it went on the day. If you have a CDH survivor maybe you would like to share how you have coped with any ongoing issues or share any milestones that they have reached. If you sadly lost your baby or child, how are you doing after your...

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CDH UK welcomes Professor Jan Deprest as a Patron and Medical Advisor

Jan Deprest is a Professor of Obstetrics and Gynaecology at the University Hospitals Leuven, in Belgium. He trained in fetal medicine in Leuven, Leiden (Holland) and London (U.K.). He established the Eurofoetus consortium, which is dedicated to the development of instruments and techniques for minimally invasive fetal and placental surgery. That group earlier demonstrated that laser surgery in identical twins with “twin-to-twin transfusion syndrome” yields the best outcome. The Leuven Fetal...

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CDH Awareness Video

We are extremely pleased and proud to present to you the very 1st edit of our CDH Awareness Film. We are aware of a couple of errors and it is not the finished article. This film has taken an awful lot of time, effort and thought and we would like to show it to you all before it goes to final edit, so that we can have your feedback. The film lasts approx. 13 minutes and will be our Charity’s main awareness film. There will be another film released at a later date focusing more on the medical...

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Moment For Memories

On National CDH Awareness Day at 12 noon, we ask you all to give a few moments to remember and honour all babies, children and adults including their families that have been affected by CDH. Thank You ♥ https://www.facebook.com/events/256582344447856/

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Our Medical Patron – Professor Paul D Losty MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed)

We are very honoured to have Professor Paul Losty MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) as a Medical Patron and member of our Medical Advisory Panel for our charity. Paul Losty is a Professor of Paediatric Surgery at Alder Hey Children’s NHS Foundation Trust and the University of Liverpool. Professor Losty trained in General Surgery and Paediatric Surgery in Dublin – Ireland, Boston – USA  and Liverpool – England. Over the last 20 years Professor Losty has successfully...

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Find out what our CDHeroes are doing to fundraise for CDH UK!

Without the support, dedication and hard work of our fundraisers our charity could not exist. Our supporters continue to amaze us! People who never thought they would be able to run a mile are running 13 and 26 miles! People who never baked a cake are baking dozens! People who have never organised a birthday party are organising Balls and themed nights! People who don’t like travelling in planes are jumpimg out of them! People who have little time to themselves are making time to help...

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CDH UK is a registered charity in England and Wales (no. 1106065) and Scotland (no. SC042410) | Privacy Policy | Disclaimer | Glossary