CDH UK

CDH UK to feature in The Guardian Newspaper Rare Disease Campaign!

Written on February 27, 2017. Posted in Uncategorized.

We recently partnered with Mediaplanet UK on the Rare Diseases Campaign in The Guardian newspaper and online at http://bit.ly/2lF2pma Readmotivating insight from thought leaders and learn more from patient stories on rare diseases. Out 28th February 2017 Rare Disease Day!

June is CDH Awareness Month! Join in!

Written on May 27, 2016. Posted in Uncategorized.

June is CDH Awareness month and we need your help to raise extra awareness, so that mean’s time to dig out your t-shirts, polish your badges, put on your wristbands, make sure the CDH symbol is on all your social media profile pictures and your car stickers are firmly in your windows!! Share the CDH UK awareness video that you will find on our website and facebook page….Oh and remember to try tell at LEAST one person on each day during June about CDH, because the more people that are aware of...

AGM 2016

Written on April 17, 2016. Posted in Uncategorized.

CDH UK Annual General Meeting Sunday 8th May at 1 pm Venue The Hilton Nottingham Address: Milton Street, Nottingham NG1 3PZ, England Please email committee@cdhuk.org.uk for further details

Call out for Research Grant applications goes live!

Written on April 4, 2016. Posted in General News, Medical News, Research.

We are pleased to invite applications for Research Grants from the CDH UK Research Fund via our partner Sparks Children’s Medical Research Charity, as from Friday 1st April 2016 until Wednesday 18th May 2016. Further information can be found along with application details via our Partner link. CDH UK would like to thank all of it’s supporters and donors who have helped us to raise an incredible amount of money for our Research Fund and anyone who would like to contribute by fundraising...

Christmas 2015 Newsletter

Written on December 23, 2015. Posted in Newsletters.

Our Christmas 2015 newsletter is now available for download here

Do you want to be an official Record Breaker? Then read on…………

Written on December 8, 2015. Posted in General News, Other Events.

CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops………..we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and...

CDH Awareness Month is June!

Written on June 1, 2015. Posted in General News, Other Events.

Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it’s complications. The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too…….here’s how: Make a short video of yourself undertaking an activity or sport that makes you breathless and then say...

AGM

Written on April 25, 2015. Posted in General News, Other Events.

Public Notice CDH UK The Congenital Diaphragmatic Hernia Charity is holding its AGM on Sunday May 10th at 1 pm Venue Leicester Forest East services J21 LE3 3GB All welcome Any questions can be made in writing to the Committee and must be received no less than 2 weeks prior to the AGM date.

‘Challenging CDH’ Event – a day of education and support

Written on January 5, 2015. Posted in Uncategorized.

Challenging CDH is the first event of its kind for families and medical professionals affected by Congenital Diaphragmatic Hernia.The day will first and foremost bring families together to offer support, but it is also a day to talk about experiences with medical professionals, to educate each other and to help to improve outcomes for CDH patients and their families and carers. There will also be activities for the children and parents/carers and the opportunity to tell CDH UK how you would...

CDH UK responds to the MBRRACE-UK Confidential Enquiry into CDH at Birmingham NEC

Written on December 15, 2014. Posted in General News, Medical News, Other Events, Research.

Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK’s response to follow. Please read the lay report and the full report here: LAY SUMMARY https://www.facebook.com/l.php?u=https%3A%2F%2Fwww.npeu.ox.ac.uk%2Fdownloads%2Ffiles%2Fmbrrace-uk%2Freports%2FPerinatal%2520Deaths%2520Lay%2520Summary.pdf&h=5AQEgIRbf FULL...