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Ongoing Support

Once you or your baby is diagnosed with a Diaphragmatic Hernia, whatever the outcome we are here to support you.

We have many years experience of supporting families with CDH and Eventration of the Diaphragm and we have supported and seen a broad range of cases and outcomes over the years. Due to the lack of knowledge and experience in general of ongoing issues for patients, we are often a place of reference or consultation by Healthcare Professionals. If you are a Healthcare Professional please contact us to see how we can help you.

We have various closed, moderated peer groups which we operate through social media and which are complimentary to your professional healthcare and the information, support and resources provided by CDH UK. Many of our group members find it helpful to chat with others on our groups to help give them support, encouragement and confidence with everyday issues such as feeding and developmental challenges.

Group HUGS - Helping, Understanding, Giving Support

This group is aimed at expectant parents and the only way you can join is by contacting us with a request to join (see below).

CDHIS - Children with Diaphragmatic Hernia Information & Support

This group is aimed at families raising children with CDH or eventration please click below to request to join. Please note that you MUST answer all of the questions before we can add you :

Request to join CDHIS

ADHULTS - Adults with Diaphragmatic Hernia Understanding, Listening & Talking Support

CDH UK Bereavement Support Group - This Group is for bereaved families and the only way you can join is by contacting us with a request to join (see below).

Please note that our peer support groups are not intended to be used as a place to obtain medical advice and you should always consult a healthcare professional about any medical concerns or health issues. 

For expectant, bereaved families or adults please email support@cdhuk.org.uk to join our closed groups.

 

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