Tag: cdhuk

Experts at CDH UK warn of ‘no deal’ Brexit effects

Chairperson of CDH UK Beverley Power, along with other Rare Disease experts wrote to The Lancet to voice their concerns of a no deal Brexit on the Rare disease community and in particular patients. The correspondence was published in The Lancet in December 2020 and the full letter can be read in our research hub. The letter has been cited and referred to in other publications. you can read the Health Europa article by clicking on the link below No deal Brexit could be detrimental for...

Continue reading

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was long, but they finally reached their destination to evidence, assisted along the way by a dedicated international team and with a little help from CDH UK. Trigger warning: Some parents may...

Continue reading

5K Your Way 4 CDH UK!

We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with Chris running over the finish line on Sunday 27th June 2021. The challenge is hosted by My virtual Mission (Conqueror challenges) app. You do not have to undertake the full mileage as indicated in the challenge,...

Continue reading

CDH UK is a registered charity in England and Wales (no. 1106065) and Scotland (no. SC042410) | Privacy Policy | Disclaimer | Glossary