Tag: cdh

The Journey of a Little Balloon

Many years ago a team based in Leuven, led by Professor Jan Deprest, set out on an incredible journey with the help of a little balloon. They set out to find out if survival rates could be improved in both severe and moderate cases of Congenital Diaphragmatic Hernia (CDH). The journey wasn’t easy and was long, but they finally reached their destination to evidence, assisted along the way by a dedicated international team and with a little help from CDH UK. Trigger warning: Some parents may...

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5K Your Way 4 CDH UK!

We have set up a nice little virtual challenge for you that encourages you to do 5K Your Way 4 CDH UK and to acknowledge and support the great challenge undertaken by Chris Davies who has been running 5K every day for CDH UK since 1st January 2020. The end of the challenge will coincide with Chris running over the finish line on Sunday 27th June 2021. The challenge is hosted by My virtual Mission (Conqueror challenges) app. You do not have to undertake the full mileage as indicated in the challenge,...

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Coronovirus (Covid-19)

Many of you may be worried about the Novel (Covid-19) Coronavirus situation and you may be seeking some advice, particularly if you or your child have any complications or ongoing medical issues. CDH UK has not to date received any specific advice relating to the CDH population and we advise you to keep up to date with advice according to the Department for Health for the country that you live in or are currently visiting. We will of course update should we receive any different advice. UPDATE...

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CDH UK makes a significant contribution at the 66th BAPS Congress

CDH UK has again attended the annual British Association of Paediatric Surgeons Congress, but both as an exhibitor and speaker this year. The event was a huge success and CDH UK made a great impact following two insightful presentations at the education day at the start of Congress and at the Scientific meeting at the end of congress. Beverley our Chair and Research & Development Officer spoke to predominantly trainees at the education day about CDH UK and it’s work and how Healthcare...

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European Reference Networks (ERNs) What they are and how they work.

CDH UK is very proud to be a founding member of ERNICA which is just one of many European Reference Networks (ERNs). ERNICA was established in 2016 for Inherited and Rare Congenital Anomalies, which includes CDH. We are also a member of the ERNICA Advisory Board and the Scientific Committee. Being a part of this network means that we work as the patient voice for CDH and we also work closely with other conditions (and their respective patient representatives) that are covered by this particular...

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