CDH UK funds vital research to help improve outcomes for CDH patients

We are very pleased to be able to announce that CDH UK has agreed to fund the following research projects that have undergone a peer review process by Sparks Children’s Medical Research Charity and will be fund monitored by Great Ormond St Children’s Charity.Building a functional muscle to repair congenital diaphragmatic hernia – Professor Paolo De Coppi – UCL institute of Child Health Long term health and health service use in children and adults with congenital diaphragmatic...

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Call out for Research Grant applications goes live!

We are pleased to invite applications for Research Grants from the CDH UK Research Fund via our partner Sparks Children’s Medical Research Charity, as from Friday 1st April 2016 until Wednesday 18th May 2016. Further information can be found along with application details via our Partner link. CDH UK would like to thank all of it’s supporters and donors who have helped us to raise an incredible amount of money for our Research Fund and anyone who would like to contribute by fundraising...

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Do you want to be an official Record Breaker? Then read on…………

CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops………..we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and...

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CDH Awareness Month is June!

Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it’s complications. The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too…….here’s how: Make a short video of yourself  undertaking an activity or sport that makes you breathless and then say...

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AGM

Public Notice CDH UK The Congenital Diaphragmatic Hernia Charity is holding its AGM on Sunday  May 10th  at 1 pm Venue  Leicester Forest East services J21 LE3 3GB All welcome Any questions can be made in writing to the Committee and must be received no less than 2 weeks prior to the AGM date.

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CDH UK responds to the MBRRACE-UK Confidential Enquiry into CDH at Birmingham NEC

Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK’s response to follow. Please read the lay report and the full report here: LAY SUMMARY https://www.facebook.com/l.php?u=https%3A%2F%2Fwww.npeu.ox.ac.uk%2Fdownloads%2Ffiles%2Fmbrrace-uk%2Freports%2FPerinatal%2520Deaths%2520Lay%2520Summary.pdf&h=5AQEgIRbf FULL...

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Display your FREE CDH Fundisc!

So UK drivers no longer need to display a tax disc on their windscreen, so we are asking you to display the FREE CDH Fundisc instead! This is a great opportunity to help CDH UK raise funds and awareness whilst on the move! We already sell our car stickers in our online shop and now you can download a FREE CDH Fundisc to help raise funds and awareness for our cause! Right Click on the image to save it to your desk top or phone and then simply print is off and display in your old tax disc holder....

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Holby City CDH storyline

A CDH storyline starts on Tuesday 10th September 2013 on The TV programme Holby City, which airs on BBC1 at 8pm and BBC Scotland 10.40pm. The storyline involves two of the main characters and spans over a few episodes. CDH UK have worked with the programme researchers and scriptwriters in the hope that the facts relating to CDH are portrayed as accurately as possible. We were invited to the BBC’s Elstree Studios to meet with some of the Holby City Team to express our interest in helping...

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CDH Awareness Day June 28th 2013

June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on 28th June! To make sure that you have got your awareness items in time start ordering them now from our ebay for charity shop here: http://www.ebay.co.uk/egw/ebay-for-charity/charity-profile/?NP_ID=37468 ‘BADGES 4 BABIES’ – Promoting recognition for the CDH symbol which represents the different aspects...

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CDH UK to speak at International CDH Conference in Rotterdam

June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on CDH UK has been invited to speak at this years CDH conference/workshop in Rotterdam, which has been arranged by Professor Dick Tibboel and colleagues on behalf of the CDH EURO CONSORTIUM,  and will take place at the Erasmus MC Sophia Children’s Hospital, Rotterdam on the 9th-11th June 2013. The conference aims to...

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