Do you want to be an official Record Breaker? Then read on…………

CDH awareness month is June and this year we thought we would go one better than shouting from the roof tops………..we thought you might like to aim a bit higher in fact around 14,000 feet higher, by jumping out of a plane to take part in our Tandem Skydive world record attempt on the 11th of June in partnership with our organisers Skyline events. This is such an amazing opportunity to do something that maybe you have always wanted to do and to raise lots of CDH awareness and...

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CDH Awareness Month is June!

Join us throughout June to raise extra CDH Awareness by joining in with our activities to help spread the word and educate others about Congenital Diaphragmatic Hernia and it’s complications. The Breathless 4 Babies challenge can be carried out anytime during June and is a great way to raise awareness by nominating friend on social media to join in too…….here’s how: Make a short video of yourself  undertaking an activity or sport that makes you breathless and then say...

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AGM

Public Notice CDH UK The Congenital Diaphragmatic Hernia Charity is holding its AGM on Sunday  May 10th  at 1 pm Venue  Leicester Forest East services J21 LE3 3GB All welcome Any questions can be made in writing to the Committee and must be received no less than 2 weeks prior to the AGM date.

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CDH UK responds to the MBRRACE-UK Confidential Enquiry into CDH at Birmingham NEC

Wednesday 11th December 2014 saw MBRRACE UK launch it’s first confidential enquiry report into CDH to a large audience of clinicians, healthcare workers, public bodies, departments, charities and other agencies. Responses were made by CDH UK, BAPM, BMFMS, BAPS, Quality Assurance/NHS Screening Programme. CDH was the first topic chosen for the project and the report was much awaited. CDH UK’s response to follow. Please read the lay report and the full report here: LAY SUMMARY https://www.facebook.com/l.php?u=https%3A%2F%2Fwww.npeu.ox.ac.uk%2Fdownloads%2Ffiles%2Fmbrrace-uk%2Freports%2FPerinatal%2520Deaths%2520Lay%2520Summary.pdf&h=5AQEgIRbf FULL...

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CDH Awareness Day June 28th 2013

June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on 28th June! To make sure that you have got your awareness items in time start ordering them now from our ebay for charity shop here: http://www.ebay.co.uk/egw/ebay-for-charity/charity-profile/?NP_ID=37468 ‘BADGES 4 BABIES’ – Promoting recognition for the CDH symbol which represents the different aspects...

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CDH UK to speak at International CDH Conference in Rotterdam

June 28th is CDH Awareness Day Here is what we have going on! ‘WEAR 4 AWARENESS’ – encouraging everyone to wear a CDH Awareness item on CDH Awareness day on CDH UK has been invited to speak at this years CDH conference/workshop in Rotterdam, which has been arranged by Professor Dick Tibboel and colleagues on behalf of the CDH EURO CONSORTIUM,  and will take place at the Erasmus MC Sophia Children’s Hospital, Rotterdam on the 9th-11th June 2013. The conference aims to...

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CDH UK FAMILY GET TOGETHER’S 2013

CDH UK welcomes all families to it’s annual Family Get Together in Chesterfield, Derbyshire hosted by the Hills Family. This is the first Get Together of 2013, with others being announced shortly. Our Family Get Together’s are an opportunity for families affected by CDH to come together for a chat and a coffee to share experiences and to offer support to each other. We also have a workshop session during the afternoon whereby we discuss a topic relating to CDH. We also have Creation...

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Find out what our CDHeroes are doing to fundraise for CDH UK!

Without the support, dedication and hard work of our fundraisers our charity could not exist. Our supporters continue to amaze us! People who never thought they would be able to run a mile are running 13 and 26 miles! People who never baked a cake are baking dozens! People who have never organised a birthday party are organising Balls and themed nights! People who don’t like travelling in planes are jumpimg out of them! People who have little time to themselves are making time to help...

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Please help and sign our e-petition for funding for research!

On 15th My 2012 we launched a campaign requesting Government Funding for research into the cause of CDH. We require 100,000 signatures by this time next year to get this request before the House Of Commons; this is a big call and a lot of signatures. Can we do this? We are certainly going to try!! This will also raise tons of awareness. Please share this epetition on facebook, twitter and as many other social networking sites as you can. You can also email it to people to sign. To find out more...

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Charity Dinner Dance in aid of CDH UK

Shelley Simmonds has organised a Charity Dinner Dance to raise funds for some fantastic charities; CDH UK is one of them! click the following link for further information and how to obtain tickets http://www.facebook.com/#!/events/112513668875029/  

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CDH UK is a registered charity in England and Wales (no. 1106065) and Scotland (no. SC042410) | Privacy Policy | Disclaimer | Glossary